thanks Linda,
I will get it from amazon. I hope we can get this project going. I know I get very enthusiastic about things close to my heart! thats what keeps me going

girija





Your enthusiasm is inspiring!
Our book is available on Amazon. Sorry, i don't have any extra copies or i would have sent you one.
I'll help where I can, but I'm one of those who has been slowing down after 14 years with PD, and can't work or write the way I used to. I want to be realistic and honest about what I can do.
I also suggested that even if the format is similar, this new book should tell its own story, reflecting the lives and interests of Neurotalk Forum members.... not be just a revision of our earlier book. Although reading thru it may give you some ideas
linda[/QUOTE]

Linda,

This is a new era, but i think taking some of the book to chronicle these changes, maybe through flashbacks to your book, can help us to see the whole picture and maybe reach some conclusions about how to proceed.

Bob , creating a new forum is easy. i do think the book shouldn't be written on the forum; then too many know about it before it comes out. let me know the consensus and all i have to do is ask Doc John.

paula

Hi,
I just read your post, I think I missed it while composing mine.
Here is my input to your points

1. Title: Let’s start with Rick’s suggestion.”Parkinson’s Perceived”
great!
.
2. Format: book, video, Internet, posters.
book, internet first

3. Define the role of the core group.
yes
I would also like to see a list of names, volunteered, nominated for the core group and if there are too many, lets have a vote or select 5-6 who can complement one another in their expertise.

4. Define the role of the editorial group.
core group's first job!

5. Using topics suggested in this thread as a core table of contents, provide additional topics.
SUGGestions from all

6. Who does the archive scanning? How?
dont know
7. If a book, do we self publish or not?
publish

8. If the venture is profitable, who or what will be the beneficiary?
open to discussion

9. Should we consider using pipeline data, and possibly some excerpts from other sources such as prior publications?

yes
10. Do we need more posting permissions?
yes

As for help in typesetting, printing, etc., We can make that determination after selecting a format.

As an experiment in data gathering I’m going to suggest that Paula W be recruited one more time in creating a new forum with the core group of posters and editors as detailed by Rick are finalized. As a test we might be able to transfer this document to the new forum?

Didnt understand this part. why a new forum?

P.S, I want you all to know I used speech recognition software to compose this piece. I don’t plan on editing it! Bob C[/QUOTE]

Do you like this sofrware and if so which one is it? Naturally speaking or some other new software?

Thanks
Girija

I've been taking my time to respond in this thread, mainly because I already have many irons in the PD advocacy fire, and I don't want to spread myself too thin. And I'm not really that crazy about other people using and editing my words and thoughts; I have a big sense of ownership about what I say, and want it to be presented as I meant it.

But the enthusiasm is just too great and the idea is good; I'm especially happy to see Linda's enthusiastic endorsement. I would be willing to do some final editing if it means that I then will have more control over how my words are used, if they are used at all.

I am also wondering if the project is too big at this point, for the timeline of a poster at the WPC.

What if you have an overall plan (like the one girija scoped out) and then broke it down into the topics you plan to cover, but do them one or two at a time so that instead of a swarm of people covering multiple topics at once, you have everyone concentrated for one purpose; the raw material could be researched by a large group; organized and written by a smaller group; and then edited by another.

Then the topic of the poster you present at the WPC would be thorough and concise, with mention that this topic is just one of many that will be presented in the final book. I think if you try to accomplish the whole thing in a year you might be setting yourself up for failure, and you want to succeed.

Also, I think just the process used by our online group to create something might in and of itself be worthy of a WPC poster.

Regarding getting permission to use people's words: I would comb through ALL posts for the good stuff, then go to those users and ask for permission to use their specific posts rather than waiting for blanket permission in advance. Don't limit your research to only those from whom you already have permission.

Paula: I was under the impression that there is a way of restricting access to designated users --in our case core and editors groups who volunteer and those who subsequently agree to allow use of material. What I am trying to accomplish is a central address to which all submissions can be copied, pasted, attached,etc. and be ready for review by one or more editors. The new forum (code name ="Parkinsons Perceived")would be the master draft of the book beginning with the intro and each topic would be a thread within the forum. If we can "secure" a designated collection point we should not have to worry about cyber thieves ,hackers, bureaucrats and naysayers. Thanks for any help with Doc John. Bob C

Hi bob,On mobile so short. Did you just mean a private invisible forum? If so. I can ask djon but it's still rick'(?) project.Paula

Please excuse my intrusion here, but I just happened to see this post.

We have social groups here on NeuroTalk and anyone can form one. They can be public which means anyone can join, or you could make a private group which limits access to invitation only.

The private invitation only one sounds like it might suit your needs, and you don't need permission to start them. Only members you've invited can join into any of the group discussions.

If you'd like to set one up and need a hand, please send a PM to Chemar or any moderator, and we'll give you a hand to get it started.

I hope that's helpful in some way.

Bandido

you may not be able to edit, but you sure can help organize! I agree about paula's "forum" idea, or why not a yahoo, where stories could be submitted, conferences held, etc. all at one site? You have to set up a "members by invitation only" group. That's how "Perrys Pipeline Project was born!

First to do - and as Linda says, be honest about what you can and can not do - is to determine who the 5-6 or 6-8 people will be to help organize this. Let's see . . . we have Rick, Paula, Linda,. . . yikes! Rick, you and paula take over from here!

Peg

DocJohn is likely able to set up private subforums here where only participating members would be granted specific access and where the editing time default can be removed so that you could keep editing as much as needed

just send him a PM request on what you would like and I am sure he would help in any way he can

the groups Koala mentioned are also available right here at NT, and can be designated private
http://neurotalk.psychcentral.com/group.php

...I will take charge to the extent of asking Paula to arrange with Doc John to set up the necessary work space where all editors can gather and figure out what we are going to do.

Once that stage is reached, however, I must reserve the right to step back and hand it to the group. I still have reservations about the size of the project and the level of support, but I'm game for now.