By coincidence I also worked in IT, which company were you with ? Drop me a pm if you prefer.

Back to the subject at hand, I can see the value of more effective monitoring / testing but I also remember my GP telling me when I was first dx that I needed to stop always testing myself as it was starting to become unhealthy for me.

All things in moderation I guess.

Take care,
Neil.

Have you looked into new tests? I need something besides the side to side tap test. Interesting, unless I make a big change to the way I do it, I can't seem to improve much.

You might find that with four or five tests, delivered at random, you could neutralize the benefits of learning.

Or even if it was still the side to side tap test, but with different keys selected. Q to M or Z to P, or W to P then Q to O for the other arm.

If you could get some more variety you'd probably have better patient retention. It doesn't look like there's a very large userbase, that could help it.

Also, there doesn't seem to be very many healthy people taking it. If you could get a few hundred healthy people taking it you could at least establish control 'norms' which seem to be missing. I had to get my wife to take it for me to see if I was really worse than normal.

aftermathman,

I agree "All things in moderation", but I'd add "even moderation".

Hamilton,

I've looked at other tests: measuring the time that the key is down looks promising.

You're right, numbers are low: 96 people have registered and completed the basic survey, 51 have completed the medications survey, only 9 describe themselves as healthy. The test has been completed 320 times.

My aim is to measure the validity of the test by looking at the internal consistency of the data: everything being equal, healthy people should have higher scores than PwP, more years since diagnosis should show lower scores etc..

If anyone wants to get involved in this area, please get in touch.

All the data is available to everybody. The code is open source.

John