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08-01-2009, 02:17 PM | #1 | |||
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In Remembrance
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http://web.archive.org/web/*/http://braintalk.org
There are a bunch of them there up to nine years ago.
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Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000. Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well. |
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08-01-2009, 02:21 PM | #2 | |||
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In Remembrance
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And a bunch more
http://web.archive.org/web/*/http://hastypastry.net Quote:
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Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000. Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well. |
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08-01-2009, 02:34 PM | #3 | |||
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In Remembrance
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OK, a lot of trouble with the hastypastry set (post crash?) but some of the older braintalk set have literally thousands of nested threads back to 2000. The only way to know the gold mines from the dead ends seem to be to try them.
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Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000. Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well. |
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08-01-2009, 04:43 PM | #4 | |||
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Junior Member
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thanks for the links, I just spent the last 2 hours reading old posts that I and others made........I wonder what happened to all those people....I know some are here....but names have changed..... thanks again
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. later......DB |
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08-01-2009, 05:09 PM | #5 | ||
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In Remembrance
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I have been at a memorial /celebration of life today.....a former student with muscular dystrophy. He was six and in first grade in my class for physically impaired when I retired. He died at 17. He was a gift...i got up and spoke, with three teachers surrounding me in case i lost balance. microphone -- i need one all the time.
His grandfather spent more than a decade searching for experimental therapies, it prepared me for my journey. so let's get searching i need some cheerin up. paula
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paula "Time is not neutral for those who have pd or for those who will get it." |
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