Saw neuro surgeon yesterday for severe back pain, havent seen my neuro (will next week) cause they all agree there is nothing can be done (heriditary PN and autonomic).... so hadn't had my reflexes checked in almost a year... they are gone - everywhere except one tiny response in one knee - nothing else in feet, legs, arms, hands, etc.. also I thought I was weaker cause of recent severe intestinal infection and then agressive surgery... no, extreme weakness on testing due to the nerve damage...... the doc would operate on normal person to get rid of some of the back pain, but says I wont be moving soon at all... so wont matter, and I agree, I'm not going thru surgery like that for nothing... anyone else with complete loss of reflexes and strength? I've been using wheelchair for years but can ambulate a bit inside holding onto walls etc, but so weak now cant even get up on a stool.

Those with PN's that affect your reflexes, have you found this normal? Any suggestions on building some mucle strength. The doc has ordered another MRI on back to see if we can do some kind of exercise to decrease pain there as its so bad. Anyone have their relfexes return? (NO, IVIG does not work for me, had large dose every week for a year and a half and was a big waste of time of money)???????