[quote=COLBEYMOORE;562269.............. My new neurologist has suggested trying Anodyne therapy (never suggested to me from my previous neurologist) he also ordered an arterial ultrasound to check my circulation[/quote]
Good
Go to www.lizajane.org
for a complete list of all the tests for causes of PN.
(plus a lot of other good stuff) Its a site only for PN
written by PN sufferers along with LizaJane.

mrsD - you said:

Quote:

One thing I am worried about is that Neurontin IS excreted whole via the kidneys. If you have reduced kidney functions, you may not be excreting it properly. This may lead to it building up in the body.

Question - do you think it's OK for someone who only has one kidney to take Neurontin? I ask this because of what you said plus I lost my left kidney in Jul 97 as a result of a blood clot settling in my left renal artery causing my left kidney to literally shrivel and die. Was under the care of a nephrologist for a year until she was satisfied my right kidney was functioning at 100%. She was aware of me being on Neurontin but never suggested I stop taking it. Hmmmmmm. I guess it was fortunate I was never on a large dose - 1200mg per day was the most I ever took in a 24 hour period.

A good doctor would make sure your creatinine clearance and serum creatinine are in the normal range before giving really high dose Neurontin or Lyrica.

Many people function at normal levels with one kidney.
You can ask for a renal panel at your next appointment.

1200/day is 4 times LESS than 4800mg/day!

I am back on neurontin. Have increased to 2100 split 3times a day and I do my increase at night. Inititally with each increase I have some side effects but they wear off. I just have to do my increases slow. I was told that to help pain it is 1800-3600 for most. Now for me my doctor and I may get this all crazy but the pain from the condition has been for so long it is now in my brain but I have RSD too so it may be in terms of that. Anyhow this med helps for the brain to not process the pain like rewire. WHere as narcotic pain meds actually make the brain process pain more in the long run if taken super regular. Now this is just for me and I know some who have been greatly helped with narcotic so I don't want anyone to think I am saying don't. Everyone is different and even as needed I have to sometimes or I will want to chop my leg off but for a regular thing I don't.

I thought of amputation as a last resort, once -but then
was reminded about 'ghost limb pain'.

Ye 'jes cain't win fer losin'....

No I am sorry. I meant that as a figure of speech because the pain was so bad. No if the limb were cut off you would have phantom pain. So it would be the same but without a limb. I am sorry that I confused you.

Daniella I am one of them that do need pain pills. Even though I take Lycria it is not enough. Sometimes Lycria and the pain pill together is not enough, I have many days like that it seems nothing works, but then I start getting some relief for some reason. Just never know which days will be good days with some relief.

Trish

phantom pain as with so many things in life damned if you do and damned if you dont.

I have slowly reduced my dosage (got tired of side affects) I only hope the side affects will go away. I live in a small town and thought it was best to travel to a big city for better care..in my case it was not.
Every appointment I told my former neurologist about the hand tremors and memory loss and he never mentioned is was due to the medication.
I selected him because he was supposed to be the best in his field.,..well I guess he has far too many patients to keep track of. Each visit with him he made me feel like a new patient and he would refer to me as a Mr instead of Mrs in our emails.
I have learned a very good lesson..and have now found a neurologist in my home town (small) but he is very thorough and my first visit told me alot and had more suggestions or hope.
I have a pending SSDI claim and I only hope switching doctors will not affect my case.