NeuroTalk Support Groups - Hi All....Spinal Cord Stimulators

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- - Hi All....Spinal Cord Stimulators (https://www.neurotalk.org/peripheral-neuropathy/101973-hi-spinal-cord-stimulators.html)

Hi Roxie,
I've not been on in a long time but I'm doing o.k. Sure glad the stimulators are working for you. I had wondered how you were because you just disappeared.

My Aunt just died from Cancer and that's where I've been. I'm terribly busy with my business too. But I just wanted to say that I'm so glad you are still with us and the stimulators are working.

Billye

P.S. Hello to all.

HI Billye!! So good to hear from you!
I haven't been on here in a long time either. Seems like I'm either dealing with pain or dealing with dr.s or insurance! My pain had been off the scale the past 6 months or so....really the pits!
So sorry to hear about your Aunt. My father passed away this summer.....he had just turned 79 and he passed away in his yard, doing what he loved best...working on his trucks.
I hope you are doing ok......sounds like you are very busy with your business.
I'll try to check in here more often....I start back to work tomorrow...I know my neck is going to be really hurting from all the driving I have to do now....ugh! Hugs to you! Roxie :hug:

Quote:

Originally Posted by Silverlady (Post 564132)

I have a SCS unit..

Quote:

Originally Posted by Roxie2007 (Post 561383)

Hi...I haven't been on here in what seems like forever. I hope everyone is doing pretty good....I know it's difficult to do "real" good with PN!
I worked all last school year and then had to have a new IV port for my IVIG infusion put in because the old went went Kaput....that was in June. Three weeks ago I had surgery and had the upper and lower Spinal Cord Stimulators put in because my PN pain has gotten SOOOO bad.
The Stimlators seem to be covering my PN pain pretty well BUT where the paddle is...in the back of my neck hasn't healed yet and the pain from that is TERRIBLE! The surgeon had to stretch the skin on my neck so it would cover the paddle of wires and that's made the nerves in my neck Very sensitive and painful. Has anyone had the stimulators put in and had problems like these I've mentioned?? I'm off work right now....FMLA for another cpl weeks...hopefully I'll be much better by then..........Roxie

I have a spinal cord stimulator, implanted last Sept.08 ,, I have RSD.. unfortunately.. it irritates my RSD and makes it mad when I use it now..Like anything else..your timing getting it in is so important for it effectiveness... My temp. worked but the Dr. and unit managers made me wait 6 mos. for the perm. to be installed that was until a smaller unit was manfactured first..well I lost the effectiveness of my unit... No trouble with healing from the surgery, just always a tender area when bumped and strange sensation where is wired.. Be careful and be sure to time it right...good luck...

Have a restful night,

I had the lower spinal cord stimulator on August 10th and I swear I would kill anyone who would try and turn it off or take it away! The surgery was not much fun but I am finally getting to the point where the "surgical" pain is very minimal for most of the time. I had a lamenectomy several years ago with no success and of course I have been through ever pain management trick in the book and none helped for more than an hour. The Medtronic stimulator WORKS well for me and I am very happy I made the decision to do it. That's all for now so please pardon the interruption and go back to your normal business:D

Wow, you are really dealing with alot of health issues,makes mine look like peanuts! I will put you in my prayers,Roxie.

I have 2 implants just like you ;)

I had my lower one done in June and upper done in August. I LOVE mine, too. Both my batteries were implanted in my lower back (the neck area sounds...ugh!). They do annoy me a bit, as they do put more pressure in that area. ( And that's the spot you'll get hit with doorknobs and shopping carts -LOL). The thing that worries me is, they say it takes 2 years before scar tissue stops growing and I hope and pray there won' t be much more!

It is a trade-off for use of these stimulators....but oh-so-worth it;)

Glad you 'revived' this thread

Thanks Vanna!
I was hoping to hear from SCS patients.....i see that the last posts were clear back in Sept. I hope they come back to share, I'd like to get to know them and to see, how they are doing with their's.
Good that you brought up the 'scar tissue' issue <--- cool rhyme! :p
That is one of the things that are a potential problem from what I've read.
I wonder if there are any 'preventative measures' a person could do ?
Probably not.
Too bad there isn't a way they coulda wired both your units into ONE battery so that you don't have to carry around 2.
I'm waiting for insurance approval. Did you have a hard time getting yours covered by insurance? I did the psyche eval and the doc wrote in a letter of "medical necessisty"......so we'll see where that leads.
There's still a small part of me (cold feet) that is wondering if this truly is what i need to do. I keep hoping that I'll have some phenominal 'breakthru' and find out that i was simply gluten sensitive or something.
I was tested twice for Lyme, amongst other 'toxicity' blood draws....i guess i'll never actually know the real cause of the PN.

I hope to hear from the others soon and i hope they are doing well with their implants.
TTYS
Rae