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08-27-2009, 06:47 PM
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Junior Member
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Lately I have been getting this tingling feeling around my mouth, back of my head, and down my arms, both sides, it's crazy.
Can PN have this effect in these areas too? Trish 
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08-27-2009, 07:06 PM
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I have both PN and RSD. I get tingling in all the areas that you said except for down my sides. When I first saw a neurologist and told him I had numbness around my mouth he said he thoughts maybe I was getting anxious about what I was going through. Then when I had positive testing for neuropathy he said it is a symtom of neuropathy. Sorry to hear your going through this. If it continues let your doctor know maybe meds need to be adjusted or added. hopeful 
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08-28-2009, 02:00 AM
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Wisest Elder Ever
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Besides anxiety... tingling/numbness around the mouth is
can be sign of electrolyte disturbances. Low Calcium for example. http://www.merck.com/mmhe/sec12/ch155/ch155b.html
__________________
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08-28-2009, 11:12 AM
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Interesting. Every time I go to see a new neuro or doc and I tell them my lips, chin and sometimes the back of my head tingles they say that's not neuropathy but never pursue it further.
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Marty Idiopathic PN - diagnosed 1999 |
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08-28-2009, 12:00 PM
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Junior Member
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Hi everyone,
I also have facial tingling/numbness at times. I feel it most often in my chin, but, at times, have felt it in my cheeks, forehead and scalp. My symptoms began approximately 18 months ago with tingling/numbness in my feet. About 6 months later I began to have symptoms in my hands. Unfortunately, during the last 2 months, the tingling/numbness has begun to affect my entire legs, forearms/hands, my abdomen, buttocks and facial areas. Other than my lower legs and feet my symptoms seem to vary in their intensity day-to-day. Based on my EMG and physical exam, I've been diagnosed with sensory neuronopathy. Unfortunately, thus far, they've been unable to determine the cause. Except for testing for celiac disease (which I hope to be tested for shortly), I've had all the appropriate lab work with no significant findings. Since my labs for Sjogrens were negative, I may be having a lip biopsy for further evaluation. Anyway, at least in my case, the facial symptoms are part of the whole neuropathy/neuronopathy picture. The neurologist indicated that it is affecting all my nerves, since it is presumed that, based on my EMG/symptoms, that the problem lies at the level of the dorsal root ganglia. Enough about me...I didn't mean to "hijack" the thread. I hope that info. might help...
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08-28-2009, 03:30 PM
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In Memorium
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My docs say its part of my PN, and also recent very invasive dental surgerymade it worse... the nerves took a real hit.
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