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Old 08-31-2009, 04:59 AM #1
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Default Weirdest EMG I have ever had .....

I got there and was seen by my old neurologist (stopped seeing him about 20 years ago - I have had epilepsy since birth so I have had a neuro all my life). From a previous rather odd encounter when I introduced myself and he said 'I recognised the name' he obviously knew it was me, but didn't acknowledge that in anyway. He was really grumpy, said I shouldn't have been booked into his clinic as I was double booked so he wouldn't have much time. I suggested we reschedule as I'd rather have a proper examination but he said it wanted to have a quick look.

Well his quick look involved my legs but as far as I know the problem is in a nerve in my back (I've been told this - my iliopsoas muscle does not work, and has shortened). So it was all rather pointless. All the same old stuff (muscles in my calves are very abnormal etc etc) but not really anything to do with my hip.

On my way back to work I pretty much decided that I am in no rush to follow it up. I am actually quite happy with my neuro's clinical dx of damage to a nerve going to my hip, and will see her again in a few months and will discuss it then. It doesn't change my treatment any and for me that is always the main thing.

It was rather weird though!

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Kitt (08-31-2009)

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Old 09-05-2009, 11:54 AM #2
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Have you had a recent mri? I thought that people can have pain in their legs but it come from the back. My condition is in my legs and I also have very tight calf muscles that are painful but my severe issue is inner ankle/foot/calf anyhow they kept testing my back and the brain to see if it was originating there which for me it was not but for you it could. So did he do the emg? Did you get the resuts yet? I am sorry your old doctor acted that way and hope you get better direction soon
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Old 09-05-2009, 05:24 PM #3
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I have had lots of mri's for my cns lupus, which are positive for that. my legs aren't painful, they are going numb actually, so it's more of a problem with movement than pain.

My lupus has caused my PN - it attacks my nerves causing both sensory and motor damage. I am treated with rituxan and steroids for my lupus, so they are doing all they can on the treatment front.

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