[Hope15]

What medication do you take, and how does it cover your pain?

What kind of pain do you have? Numbness? Balance problems or problems walking?

Has your neuropathy progressed? Improved?


I guess this is sort of a mini poll for those who are interested.


I have had neuropathy for about four months. I take 1800 mg. of gabapentin, which seems to work sometimes and other times it doesn't. I also take vicodin which sometimes also helps, depending. My pain ranges from fairly bad to lower level. The type of pain I have is body wide burning, stabbing, cramping, searing and stinging. Only rarely do I feel tingling. It will often come and go in specific areas, but is always going on. I currently have no numbness, balance problems or problems with walking at this time.

I saw a second neurologist recently, took another set of blood tests, and am having my first EMG in the beginning of March. I am also looking into going into pain management.

[mrsD]

30+yrs. Back when it started I had carpal tunnel also. (started before my son
was born)

I don't use any Rx med for it orally. But I very occasionally use
Lidoderm patches on the tops of my feet. Haven't used any since New Year's, for example.

When burning is very bad I use Biofreeze on it. (usually in the hot summers)

Sometimes Tylenol and sometimes AlkaSeltzer. But not recently. Sometimes OTC Aleve liquigels. But not every day, or even every week.

Gabapentin, and tramadol were not available 30 yrs ago.
Using my supplements did help. Controlling my diet helps.
Fixing the thyroid problem helped enormously.

I baby my feet now. Wear shoes that they like.
I have learned self hypnosis and am rather used to it by now.
I don't think about it much except when I post here. When they bother me it is always at night. Rarely in the daytime now.

[spkar0517]

I think that we who suffer are being denied the research needed. Every clinical trial I can find is for diabetic neuropathy. Doesnt anyone want to figure out what is causing the debilitating pain for the idiopathic?

[diagnonsense]

Originally Posted by Hope15

What medication do you take, and how does it cover your pain?

What kind of pain do you have? Numbness? Balance problems or problems walking?

Has your neuropathy progressed? Improved?


I guess this is sort of a mini poll for those who are interested.

Well, I have noticed sx's for less than a year. (it will be a year next March?)

I only had some burning pain briefly, and then it went away. Other than that I am not in constant pain.
And I do get some face pain, and migraines.

I think the face pain may be related, the migraines aren't.. I've had those for years.

My main issues are numbness and weakness.

Almost a year ago when this started it was weakness in my upper extremities.
(sparing my legs)

Now, I have problems with total lack of feeling in my feet that comes and goes, and difficulty walking.

I think my arms may be alright though?? I haven't dropped any more cans of soda on my computer in a looong while.

However, since there is now difficulty walking that wasn't previously there, we are assuming I am progressing (it was sensory greater than motor)

[echoes long ago]

i have had PN for over 7 years now. It has progressed steadily from my big toe on both feet to just below the knees and in my hands past my wrists. In the beginning it was very painful in my feet, stepping on a pebble was like stepping on an ice pick. My feet and legs eventually progressed into a deeper degree of numbness which helped the pain , along with many other things i have tried to differeing degrees of success, tens, interferential therapy, vitamins, wellbutrin, neurontin, lyrica, topamax, paxil, effexor, trazodone. Except for wellbutrin which did help the pain, the other drugs i did not react well to. Recently in the last 9 months the pain has started to ratchet up again in my feet especially.

Because of deep numbness in my feet my balance is very bad, ironically i also feel like i am walking or standing on broken bones even through the numbness. 20 minutes is it for me standing. I also drop or knock over a lot of things with my hands.

I have waged a long war with PN and feel that im losing badly.

[nide44]

Since the invention of pain
(& the wheel, & fire, & flint tools)
:-(

[Kitt]

Originally Posted by echoes long ago

i have had PN for over 7 years now. It has progressed steadily from my big toe on both feet to just below the knees and in my hands past my wrists. In the beginning it was very painful in my feet, stepping on a pebble was like stepping on an ice pick. My feet and legs eventually progressed into a deeper degree of numbness which helped the pain , along with many other things i have tried to differeing degrees of success, tens, interferential therapy, vitamins, wellbutrin, neurontin, lyrica, topamax, paxil, effexor, trazodone. Except for wellbutrin which did help the pain, the other drugs i did not react well to. Recently in the last 9 months the pain has started to ratchet up again in my feet especially.

Because of deep numbness in my feet my balance is very bad, ironically i also feel like i am walking or standing on broken bones even through the numbness. 20 minutes is it for me standing. I also drop or knock over a lot of things with my hands.

I have waged a long war with PN and feel that im losing badly.

Did they ever give you some kind of diagnosis? Curious.

[echoes long ago]

diagnosis is sensory motor primarily axonal with demyelination peripheral neuropathy. Official cause is ideopathic, though im sure it was caused by toxins.

[Kitt]

Originally Posted by echoes long ago

diagnosis is sensory motor primarily axonal with demyelination peripheral neuropathy. Official cause is ideopathic, though im sure it was caused by toxins.

Just curious if you ever had any DNA blood testing done for a hereditary syndrome?. Anyone else in your family have anything similar? Thank you.

[echoes long ago]

no one in my family has had anything similiar from what i can find out.....i have asked around at family reunion and from relatives but nothing has come up.