I know it is, but I only started it this past week so I don't think it is the thing that started it all.

A person with CMT should never take Flagyl. It has a moderate to significant risk and I know of people whose neuropathy is much worse since they took it. Not for us anyway.

well, I am only on it for a month- if I think I have gotten worse I will stop & tell him. Something needs to be done about the IBS though, and this was the solution. (He has gone though all other drug and non drug combo options)

I have read that zinc has helped many with IBS. They have found that many with IBS have low levels of blood serum zinc and that they excrete more in their stool than is normal. Can you have them check your zinc levels?

600mg is the recommended top level, but some have gone to 750 or even 900 on tests, and if deemed necessary. You are not getting correct information from this doc (or he is out of date/misinformed, which means he's not up on the latest- to treat you properly)

I don't like him at all- his personality sucks (ok- it is non existent), and he is not helpful at all- the last time, as I posted in another thread- all he could say was "What do you expect me to say?" "What do you want me to say?" and "Have you ever heard of a support group?" I'm like your the F***ing dr- you are supposed to help me. oy.

However, I am afraid to go looking for another pain dr (that would be Dr # 3). They will think I am drug seeking. And it won't look good having been though 2 other dr's- they are always suspicious when you leave your last one. Plus I wouldn't know where to start to find a good one around me- anyone in the Boston area have any suggestions?

I can't think of the name of the hospital, its a major one in the area -
the old BT 1 was started as an adjunct to it (Mass General?). Maybe someone here can remember the name.
Excellent neurological dept.
Very up to date and does neuro/PN research.
I'd suggest you go there.
Forget independents and hook up with a teaching institution with a large neuro dept that will treat you with the most advanced treatments and meds.

Well, at the moment I am currently at Tufts New England Medical Center which is not exactly a small independent hospital- it is a teaching hospital. More of the Dr's I have encountered at BW and the Partners section are not as nice as the Tufts dr's. (My Neuro is at Tufts- he is not prescribing the drugs as he says since it is auto immune it is therefor the Rheum. departments issue, but he spent about 2 years doing thorough testing on me to figure out the problem- sending em to numerous specialists, etc. The people I saw at BW for this basically told me it was either a) a pinched nerve and would go away in a week, or b) in my head. And the Neuro there didn't want to do any tests at all. Which is why I went to Tufts. My Rheum Dr. is at Tufts and they did through testing too, and were very nice responsive people, until one left- and didn't hand me off to another Dr. My Neuro Optomologist is at Tufts as well and is the Best.) I just have issues trusting the people in the "Partners" group because the Dr.s who refused to do testing, the one who said it was in my head, and the Old Pain Clinic dr were all part of that group. I don't know if BI or MGH are part of this group as well, but they are harder to get to (esp. MGH).

Does anyone know if it MGH is part of Partners? Or even better- does anyone in this area have an AWESOME dr they would want to reccomend?

I will be going thru IVIG infusion therapy for my Fibro and PN in a week. It is to fight off my fatigue and nerve pain. Evidently this therapy is suppose to be very effective but of course expensive... The Pharmacist that works for my insurance company called me a couple of nights ago to ask me some questions and she said it should help me with my neuropathy. I want to get off Lyrica as I gained 70 pounds on it, but it helps so much that I can't get off of it without being in excusiating pain. I have to beable to work.. Anyway, I will let you know how this goes.

Is your pain doctor an anesteselogist as well? I would find one that is both. I have seen more then 3 and none gave me narcotics so it was not about being a drug seeker as I was deciding on interventional treatments which I tried and made me worse so started back on nerve meds and anti inflamatory. My best pain doctor I found after places that are big names like Cleveland and Ucla was in my hometown. I called a major teaching hsopital there pain clinic and explained my conditions and asked who deals with it a lot and I was suggested my current. He has been the best by far because he looks outside the box,listens/explains,and does not give up plus it is not his way or the highway. Hang in there