Thanks You...I am going to start all of that now!!!....thank you , any other tricks please tell me ....what supplements should i be taking, my blood work and mri all came back normal!! I will start the omega 3, how much do i take? and what other supplement beside a 1 a day vitamin should I take...thanks!!!!!!

numbat and mrsd.....can u tell me that site you liked alot for bms info and any for support? thanks!!

I originally had bms back in 2015 thru time it got better and I hardly knew I had it. Then starting in 2021 I was diagnosed with glossopharyngeal neuralgia and had surgery on that nerve ( which they ended up cutting) and putting in a decompression pad to keep the artery away from that nerve. Then about 4 months later (and following my second Covid vaccination) my bms came back with a vengeance. Not only that I now have a taste I get in my mouth that is very sour and is really worse than the burning sensation. No matter what I eat it leaves a sour taste after I finish eating. Food tastes fine when I’m eating but shortly after the sour taste comes on. Brushing and flossing my teeth helps at times but not always. I’ve tried just about Everything I can think of but can’t get the sour taste to go away. Anyone else have this problem?

Hello All,

My name is Paul and I live in USA. I am on this forum because I have severe mouth pain in the roof of my mouth, which began around Fall 2010. I think that it is caused by nerve damage/Burning Mouth Syndrome. Also, I had dental work done (cavity filling) around the time the pain began, so perhaps this caused the problem. I have seen a dentist, oral surgeon and neurologist. I have an appointment next week with another dentist too. They are not sure of the cause, and of the best treatment for the problem. I am taking neurontin and amytriptylene, which initially helped to reduce the pain, but after awhile the positive effects of the medication seem to have worn off, and I still have the severe pain. This is definitely life altering, painful, and scary, since I have never had severe chronic pain like this, and it has lasted nearly 2 years without any sign of abating. However, it does come and go a little, but the difference is between severe pain and moderate/minor pain, so it is always there in the background even when it is not agonizing (which it is sometimes). In order to help make this problem go away, I have made a number of lifestyle changes. I quit cigarettes, alcohol, and soda (which I replaced with coffee). I thought this would help, but the severe pain is still here to haunt me. It gets worse if I drink citrus/fruit drinks or eat berries or things like that, which is also a problem because it affects my ability to eat healthy foods. Also, just plain water makes it hurt. One other thing I might mention is that I smoke marijuana, which helps medicate OCD which I also have. I have been trying to cut down, for reasons including the fact that it makes the severe mouth pain on the roof of my mouth much worse after smoking. However, most of the people/health care providers I have talked to seem to think the marijuana is not the cause of my severe mouth pain, and that it is for the most part a separate health issue that I should work on. After consulting many people, it seems more likely that the dental work I had back in Fall 2010 caused the severe chronic mouth pain, since it started around that time, while I have been smoking marijuana since 1998 and never had a problem like this before. I certainly hope that I will not have to deal with this severe chronic mouth pain for life, and that I can arrange for treatment so that I can carry on with my life! Thanks very much, Paul

(Continued) By the way, I forgot to mention that I had a CT scan as well as x-rays of my mouth, and the doctors and dentists were not able to pinpoint any cause for the severe pain on/around the roof of my mouth. I am scheduled to take an occlusal analysis next week to determine if there is a problem with my bite, for instance if my teeth were slightly misaligned after the dental work I had in 2010. Okay, I think I've mentioned most/all of the important information about my painful situation. I hope that this awful condition will be gone before I am! Bets of luck to all.
Paul

You might already know this, but I have heard that alpha lipoic acid can sometimes help with burning mouth syndrome.

Hope things get better soon.

Welcome to NT.

Thanks to David, I was just going to mention that. It's also been suggested that there may be a link between BMS and diabetes, so that may be something to pursue with your (Paul's) doctor.

In lieu of Alpha Lipoic Acid, you might try 'stabilized' R-Lipoic Acid, which is well known on this forum. 100 mg. of R-Lipoic Acid is considered equivalent to 600 mg. of Alpha Lipoic -- less (and smaller) pills to take, and the stabilized form is reputed to be better absorbed (more of it getting to where it needs to be).

Lipoic Acid Helps Quench the Fire of Burning Mouth Syndrome

Chronic use of 'chronic' can deplete some essential vitamins, which could have an exacerbating effect on BMS. Something else to look into.

Doc

I started with these symptoms last year and thought I was losing my mind..... I have always eaten hot, spicy foods all of my life but one night my mouth felt like it was on fire, my tongue, upper palate and lips. I immediately went on the internet and found others were having the same symptoms as I. I did read that it is a symptom that occurs in post menopausal women..... I had never heard that before.

The weirdest part is that it comes and goes........ I may have it 24/7 for a week or so and then not have symptoms again for months. I continue to eat hot, spicy foods unless I start having symptoms..... When I'm not symptomatic I can eat anything I want.....it's really a weird sensation.... I usually keep ice cream in the freezer which seems to provide some temp relief...

The thing that comes to mind that I heard early on with the covid issue is people experiencing so many different issues and smell and taste were a couple issues. I've not had covid or the shots. And no burning mouth experience.

Yes, mine improved after we moved out of our moldy house. Mold can cross the blood brain barrier and damage cranial nerves. Mold damages everything.