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Old 11-03-2015, 02:20 PM #551
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Thanks so much for the welcome! News town , when I was reading your posts I did think you sounded like you think how I think at times-- Some doctors have called it somaform (?) disorder or call it hypochondria , but it is included in OCD -- I've had other irrational thoughts that cause intense anxiety over the years. It's horrible, but I think the horrible part is the negative anxious mental ruminations affect us physically. I think the mind is so powerful because I can make symptoms happen by believing something is wrong---I just wish I could use that same brain power to heal myself! I watched that video that I think as posted by Mrs.D about the power of the mind to heal vs. conventional medicine and it is definitely worth watching. I listen to healing meditations and they do calm my anxiety. A calm positive mind is so important for healing.

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Old 11-03-2015, 05:07 PM #552
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Well, I wish my peripheral neuropathy WAS from hypochondria there, Bunnyluv, but yes, the role of the mind is very important. Have you had a nerve conduction test and the Emg , etc? That would help clear up, perhaps, if your symptoms are truly from alcohol abuse or are psychosomatic.
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Old 11-03-2015, 05:38 PM #553
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Originally Posted by newstown View Post
Well, I wish my peripheral neuropathy WAS from hypochondria there, Bunnyluv, but yes, the role of the mind is very important. Have you had a nerve conduction test and the Emg , etc? That would help clear up, perhaps, if your symptoms are truly from alcohol abuse or are psychosomatic.

Hi, I hope I didn't make it sound like I thought your PN is psychosomatic
I know that you are suffering miserably from what you've written--I'm just saying when our thoughts turn to the worst possible scenario then it just makes symptoms feel worse and hard to believe it will get better. It's the old "What If?" monster: what if I never get better, what if this or that?
No I have not had a nerve condition test, but I know my symptoms are not all in my head because they started BEFORE I had heard about PN.....I never knew about it until I started having the pins and needles. However, if I had read about it then I would believe that I was making myself feel pain (although not this intense). I-- like you --wish that this was all anxiety based!
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Old 11-03-2015, 06:03 PM #554
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Quote:
Originally Posted by bunnyluv View Post
Hi, I hope I didn't make it sound like I thought your PN is psychosomatic
I know that you are suffering miserably from what you've written--I'm just saying when our thoughts turn to the worst possible scenario then it just makes symptoms feel worse and hard to believe it will get better. It's the old "What If?" monster: what if I never get better, what if this or that?
No I have not had a nerve condition test, but I know my symptoms are not all in my head because they started BEFORE I had heard about PN.....I never knew about it until I started having the pins and needles. However, if I had read about it then I would believe that I was making myself feel pain (although not this intense). I-- like you --wish that this was all anxiety based!
I would recommend you get the nerve test if you can, that will help you narrow your focus a bit I think.
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Old 11-11-2015, 07:23 PM #555
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1553 days sober. But, that is not as numerically cool as Wide-O and his 1234!!

I am fine, so I will move on to bunnyluv and just say a BIG "Welcome" from this group of messed up, broken, beat down, picked up and dysfunctional anonymous folks here in this slot of internet stuff....

We bounce ideas off each other and then gripe when things are not perfect, but that makes us good at what we do. We get it. We understand. We keep moving on....

Come with us...
Not trying to one up, but I looked at my counter and had no idea I had a cool number. 777 days!!

I went to a pain Doctor yesterday and he wants me to try nucyenta. has anyone tried it? Ill read up on it some more. I have seen some people across my travels on the internet that did like it for nerve pain.

Either way, I am not going to drink. That's the one thing I can control and that's nice.
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Old 11-12-2015, 04:56 PM #556
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Short update: almost tramadol free (at 1/9th of dose) and the amitriptyline works much better than expected, which is great. Needed to buy new dose today which set me back $2.00 (still makes me giggle). No side effects so far.
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Old 11-14-2015, 05:25 AM #557
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Okone1, 777 days is awesome and not just because it is a cool number - well done!

I have never been on Nucynta but you might find the information here helpful when talking things through with your doctor; http://www.drugs.com/nucynta.html .

All the best.
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Old 12-02-2015, 08:37 AM #558
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1582 days sober.

My doctor put me back on Alpha-Lipoic Acid and has me doing exercises to help with my "nerve damage". So far I can't tell a difference....SMH.

I will reiterate that I do NOT have any pain whatsoever, but I still walk with a bit of a gait and still get tired if I stand still too long. But, after 4 years of sobriety, I can honestly say that quitting drinking was the best thing I have done for my mind, soul and body....
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Old 12-02-2015, 06:21 PM #559
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Icehouse, 1582 days sober is a great achievement - well done .
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Old 12-03-2015, 03:13 PM #560
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Hi
I was diagnosed with PN but my Neurologist does not know what the cause is. All my blood work came back normal except for his nerve testing. Horrible pins and needles and burning in my feet on Gapapentin, with little relief. I have kept drinking since my diagnosis 6 months ago...sigh and have been a heavy drinker for 35 years.



Today will be my third day sober I know its not a lot but one day at a time. I had horrible pins and needles last night which were worse than I ever has before but I WILL NOT DRINK AGAIN NO MATTER WHAT.

I look at it as my body healing , and I pray to God that its not too late for me God Bless
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