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Old 04-04-2017, 09:04 AM #831
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An update on my progress...I surpassed 100 days not so long ago. Feeling good.

PN went altogether for awhile, then came back a little, then went a little, back a little...but manageable for sure. Connected to food intake now...I'm guessing sugar, carbs and gluten. Any input with people's experiences with this would be welcome.

Noticed my partner drinking almost every day now actually, and getting pretty drunk twice a week. She doesn't say it in so many words but there's a 'you can't talk' about her attitude when I mention anything. I should have ended the relationship with her really but haven't wanted to rock any more boats right now with so many changes in my life.

Have a friend staying at my house for awhile and he's on just about every drug known to man...alcohol, weed, benzos and painkillers. I had planned to try smoking marijuana to help relax but seeing him has put me off. I just don't feel like I 'need' anything to be happy, fun or upbeat. And when I'm not, that's ok too.

Really enjoying the time distance between when everything went wrong for me through a series of drunken debacles and now. The bad past is being mentioned less and less and less, thank g-d. And I'm earning respect back week by week. My work output is so much better, I ran a 10k race in a good time at the weekend, I'm punctual, better dressed, clean all the time (not common when drinking constantly) and much more level headed.

Nice to check back and see people doing good.
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Old 04-04-2017, 11:02 AM #832
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Hello all. I haven't been posting in that no change to report here, and if anything I have declined some. As others have reported, stress is a major factor and I have been under much. The only improvement that I have noticed is that I no longer get the crazy heart palpitations. I was convinced I had the cardiac myopathy since the neuropathy is throughout my body and the "episodes" were not provoked by stress and often came when very relaxed. I guess I will look at that as progress.

10decisions, keep it going, it is all good. Icehouse, as always you are an inspiration. My gratitude to all who keep this thread going. It is only through your support that I continue onward hoping for a better tomorrow.
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Old 04-04-2017, 11:56 AM #833
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Quote:
Originally Posted by 10decisions View Post
An update on my progress...I surpassed 100 days not so long ago. Feeling good.

PN went altogether for awhile, then came back a little, then went a little, back a little...but manageable for sure. Connected to food intake now...I'm guessing sugar, carbs and gluten. Any input with people's experiences with this would be welcome.

Noticed my partner drinking almost every day now actually, and getting pretty drunk twice a week. She doesn't say it in so many words but there's a 'you can't talk' about her attitude when I mention anything. I should have ended the relationship with her really but haven't wanted to rock any more boats right now with so many changes in my life.

Have a friend staying at my house for awhile and he's on just about every drug known to man...alcohol, weed, benzos and painkillers. I had planned to try smoking marijuana to help relax but seeing him has put me off. I just don't feel like I 'need' anything to be happy, fun or upbeat. And when I'm not, that's ok too.

Really enjoying the time distance between when everything went wrong for me through a series of drunken debacles and now. The bad past is being mentioned less and less and less, thank g-d. And I'm earning respect back week by week. My work output is so much better, I ran a 10k race in a good time at the weekend, I'm punctual, better dressed, clean all the time (not common when drinking constantly) and much more level headed.

Nice to check back and see people doing good.

Just wanted to let you know how amazing I think you are doing in spite of the obstacles you have; i.e.. your partner and friend.

Keep on....keeping on.

Gerry
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Old 04-04-2017, 12:04 PM #834
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Pam,
That is really good news. I really think DB's trip home and his Dad's response to SIL when she hadn't realize her brother had been by to see her to say goodbye the night before. She was so "out of it", she didn't even know he had been there. Their father really let her know what he thought and felt.

Just the fact that she went is a good sign of her letting go of her denial. Success may be difficult, as you well know; especially the first time she is really putting forth a "real" effort.

Both she and DB are in my prayers.

Gerry
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Old 04-08-2017, 10:38 AM #835
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Just a quick check-in to update y'all on my laser treatments and disc decompression. I've had 13 treatments to date, and I wasn't feeling much of a difference except getting spasms in my right calf. Then last night and into this morning, I have had horrible neuro itch - creepy crawlies beneath my skin on my left foot. It feels really awful, but I am hopeful that both the itch and the spasms mean that my nerves are "waking up".

Does anyone else here have those symptoms? I have had them come & go in the past, but never as bad as after I started treatment.
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Old 04-09-2017, 04:38 AM #836
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Gosh I hope & pray it's a good sign & they are indeed waking up & I doubly hope the neuro itch becomes bearable. My poor old dad suffered terribly with PN, of course knowing what I do now about alcoholism and functioning alcoholics I know dad was high functioning & he had many rules in place to keep it under control. The lack of feeling in his feet and walking shuffle should have been a give a way sign but doctors tended to ignore it in those days. Hang in there, my dad lived a good long active life despite all his infirmities until he was 89.

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Just a quick check-in to update y'all on my laser treatments and disc decompression. I've had 13 treatments to date, and I wasn't feeling much of a difference except getting spasms in my right calf. Then last night and into this morning, I have had horrible neuro itch - creepy crawlies beneath my skin on my left foot. It feels really awful, but I am hopeful that both the itch and the spasms mean that my nerves are "waking up".

Does anyone else here have those symptoms? I have had them come & go in the past, but never as bad as after I started treatment.
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Old 04-09-2017, 04:04 PM #837
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I have the pins and needles and I guess it I wanted the visualization of worms crawling under my skin and throughout my muscles that too could describe it but I dare not let my mind go there. I have no itch but I have heard of many others complain about that.
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Old 04-10-2017, 03:27 AM #838
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I guess much depends on the type and places of nerves that are affected. For me, it was at first a combination of sharp shooting pains, constant burning - literally, like there being a flame to my feet, and the feeling someone was trying to remove my big toes with pliers. This was the stuff of nightmares, truly.

Today, at the worst moments, it's the tired pain of a broken foot that is now healing, at the best moments the feeling of there still being a few pebbles under the curl of my toes, and the insensitivity of a burn wound that is now healed. Which is why I always say that it's 80% better - most of the time.

I've never experienced crawling critters or itches, nor do I have any loss of motor control. I can walk normally, even dance. But I still needed to relearn driving as the touch of the pedal feedback only came back slowly after the pain had stopped drawing out the rest of the feeling.
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Old 04-13-2017, 10:43 PM #839
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Quote:
Originally Posted by WannaGetFeelingBack View Post
Just a quick check-in to update y'all on my laser treatments and disc decompression. I've had 13 treatments to date, and I wasn't feeling much of a difference except getting spasms in my right calf. Then last night and into this morning, I have had horrible neuro itch - creepy crawlies beneath my skin on my left foot. It feels really awful, but I am hopeful that both the itch and the spasms mean that my nerves are "waking up".

Does anyone else here have those symptoms? I have had them come & go in the past, but never as bad as after I started treatment.

The only time I felt the "creepy crawlies" beneath my skin; especially on my legs was when I was on Lyrica. That was some years ago. I only was on the Lyrica for a few weeks since I didn't tolerate well the "creepy crawlies" .


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Old 04-17-2017, 11:49 AM #840
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Wow i never thought there could be ANOTHER TRIGGER OR CAUSE

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