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11-07-2017, 11:13 AM | #1 | ||
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Junior Member
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I'm almost a year sober....I never thought I'd say that.
I'm very thankful neuropathy was something that arrived at the end of my drinking, because it seems to be the case that recovery takes less time. Luckily(?) complications due to being an alcoholic almost killed me, and precipitated becoming sober before I inflicted even more damage on my nerves. I wonder sometimes if I had that near death experience to stop me from drinking. Like something divine. Because I don't believe I would have done otherwise. And 6 months more drinking would have literally cost me everything. Very interesting to read about people's triggers...because it all applies to me. My neuropathy provoked by a few things for sure, such as sugar, caffeine and pain killers. And potentially...having read the last 10 pages of this forum...salt. I hadn't considered salt until checking back here. My neuropathy developed into pain only. Feeling and movement came back in full after about 3 months. If I eat like a saint meaning little sugar (and I guess salt too), have little stress and exercise regularly, my symptoms essentially go. More than 5 cups of tea in a day, and a box of Lindt chocolate...I get some tingles on an evening and burns when I lay down. My aim of this post was to let you know I'm not off the wagon! To reassert that my experience is diet is HUGE when it comes to Nueuropathy, and to ask if anybody has experienced significant worsening when laid horizontal? I can have 0 pain all day, and complete movement. Lay down and I get tingling then burning. Luckily I can actually sleep through it now...and weirdly, it's ok in the morning. I've thought about seeing a specialist but currently I'm fine, and I do improve every 3 months. However, I sense my improvement has reached a limit, or a slowing phase. And I do worry that maybe I'll suffer from degradation as I get older. Does anybody have any info relating to ageing and worsening of neuroparthy? I'm 29...so this could be a tough ride in later years. Any tips on dealing with regrets? Thoughts, and bad thoughts, keep creeping in from time. My most recent relationship...which I've referred to here a couple of times recently broke down, and I've actually started to think back to the relationships I had whilst an alcoholic. I didn't do anything overtly bad, no physical abuse etc,...but I basically wasn't me, and definitely wasn't very nice. I'd like to be able to apologise to them, but unfortunately I couldn't imagine them speaking to me again. I'm going to wait until I've fully rehabilitated myself, maybe in 5-6 months, and reach out then just to explain what was going on in my life at the time. It's been nice to check back and see how people are doing, and I really hope things look up for you Second Chances. Regarding supplements...i have taken a month break from everything except a B complex, and Tumeric. I was taking 12-16 tablets per day for 10 months, and decided a break may be helpful. I really do feel like the massive supplementation programme I was on helped, and I'll be back to it soon. |
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"Thanks for this!" says: | ger715 (11-10-2017), Icehouse (11-07-2017), kiwi33 (11-07-2017), mrsD (11-07-2017), PamelaJune (11-08-2017), SecondChances (11-09-2017), Wide-O (11-07-2017) |
11-07-2017, 04:11 PM | #2 | |||
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Member
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I'm very happy with your post 10d, awesome work there.
There's a lot that resonates with me, and I will reply in full in a few days. Am off for a small surgery in a couple of hours, so time & attention aren't ideal, but I promise to get back to you. Again, great work, and as you know, we know how big a deal it really is, in this little corner of the internet. Promise to check back in, OK? |
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"Thanks for this!" says: |
11-07-2017, 04:27 PM | #3 | |||
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Grand Magnate
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That is excellent 10d.
As far as your negative thoughts are concerned, I sometimes get them as well. I have found that using a combination of Cognitive Behavioural Therapy and mindfulness methods help me. I was taught them by my clinical psychologist (I am in remission from clinical depression as well as alcohol abuse) - maybe something similar might work for you? Wide-O, I hope that all goes well with your surgery.
__________________
Knowledge is power. |
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"Thanks for this!" says: |
11-09-2017, 09:33 AM | #4 | ||
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Member
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10Decisions, congrats on your sobriety. Overall you are doing amazing well and while further progress may be slow, it sounds like you caught your neuropathy early and can likely expect further improvement.
Yes, it is the horizontal that brings on the burning in my lower extremities. I wonder if that is the position or that it is the end of the day that brings it on. As to regrets I have many but I try not to let head to go there. When it does I tell myself I did the best I could under my circumstances and "It takes what it takes" and had to be on my knees praying for death and close to suicide til I realized I had to make changes. I have ruined my good looks and essentially made myself a cripple and ruined my excellent health but I can't dwell there and can only try to use this remorse to vow NEVER to go back there again. Should you want to make amends I would recommend via email or letter in case it is not well received and also you can carefully choose your words, but if your past haunts you then apologies and explanations can be very cleansing for all. I have been hurt by many these last several years and I would love to get their amends so I could forgive and forget. I use to tell myself that I am only hurting myself but in hindsight I now realize I hurt my family as I am not who and what I was and therefore I have wronged them as well. In failing health I realize that they may feel the need to care for me and that was never my intention. Unfortunately I can never disclose my alcoholism and that will need remain my dirty little secret. Best wishes to all. |
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11-09-2017, 11:59 AM | #5 | ||||||||||||
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Said it before, but it bears (bares?... damn, this is one I'll never learn no matter how long I'll try to master English) repeating: awesome work.
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I also sleep (in normal circumstances) like a baby. My PN has never ever kept me awake - apart from those cramps, usually when I have done hard labor in the day or days before. Like I don't use my toes correctly because I don't feel them, and the muscles don't get the correct guidance. Quote:
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If you don't mind a personal anecdote: one day I wrote a message to a friend that was way way way over the line. It doesn't even matter that she kinda deserved it, but my reaction was totally over the top. I was hurt, I lashed out, and was rude as hell. Think of the worst swear words you know. Now double that. That was my message. My best buddy, who also knows this person, knew what had happened. He didn't comment for a long while, but one day, he said: "dude: you need to apologize. I know why you were angry, I know your heart was in the right place. But you were a rude 4sshole". He said it very kindly, but he meant it. I had long left the online community where this happened, but I heard him. I logged back on, and wrote a totaly sincere apology. I wrote that I didn't expect her to forgive me. I wouldn't bother her further, but just wanted her to know I was sorry, genuinely sorry, that I was out of line. That there were no excuses for what I said. None. End off. No need to reply. Logged off, never talked about it again to my buddy (but he knew I had sent the message), never gone back there. Two years later, this lady welcomed me back with open arms into that community. It brought me to tears, it made me feel very humble. We never talked about it again, and made jokes, just like we had done all those years before. This second part may or may not happen to you. I certainly didn't expect it! Way too many words again, sorry, I'm in babble mode. Still, I hope it somewhat answers your question. Quote:
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You are not "a cripple". You are way more, so much more, a human, with still a lot of opportunities to make something of your life. To do things you love to do, or find new ones. Yes, your body may not be 100% again. And that is rough and painful. But you are not defined by the things that aren't OK. You will find a way, just keep believing in yourself, be kind to yourself. And never forget: we are here for you, this silly little place on that huge internet where we know what the other is saying or going through, as we can exchange many of the T-shirts. Finally, I'm very happy. My procedure went beyond expectations. I babbled enough, so I'll keep this short: it's fixed, the staff were angels, the pain much less than expected. Is it wrong to give flowers to a surgeon when you go back for routine control? I'll find out soon enough. |
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"Thanks for this!" says: | 10decisions (11-10-2017), ger715 (11-10-2017), kiwi33 (11-11-2017), PamelaJune (11-09-2017), SecondChances (11-11-2017) |
11-11-2017, 11:09 AM | #6 | ||
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Member
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I have repeatedly been told that quitting smoking will help with the neuropathy issues but to date have been unsuccessful in that effort, however I am cutting back. I don't know if it is just coincidence but I have noticed a slight improvement in my leg weakness these last few days and I notice also that after a couple hours without a smoke the burning is less intense and then a smoke seemingly brings it on. Today is the first time I have associated the cigs with the PN and will need to more closely monitor to see if it continues to hold true. If so that is encouraging and yet one more major reason to quit.
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"Thanks for this!" says: |
11-11-2017, 11:13 AM | #7 | ||
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Member
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Wide-O, happy to hear the procedure went well. Flowers are always appreciated. In the past I have written thank you notes only to see them years later still posted on the doctor's bulletin board. Any gesture to show thanks is always well received.
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"Thanks for this!" says: |
11-11-2017, 03:03 PM | #8 | |||
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Grand Magnate
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Wide-O, that is excellent about the surgery .
__________________
Knowledge is power. |
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"Thanks for this!" says: | PamelaJune (11-11-2017), Wide-O (11-11-2017) |
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