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10-05-2009, 02:46 PM | #1 | |||
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if you do a search on Dellon here and at other peripheral neuropathy boards there have been a lot of posts about this in the past. The record for this is very mixed at best.
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10-05-2009, 10:09 PM | #2 | |||
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Wise Elder
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Quote:
I'll do a search on Dellon as you suggested. I also called up the Neuropathy Center at Cornell. I told them all about Alan and told them what tests he has had done. I then asked her if they do anything different. She was very honest, she said "no, it seems like he's had all the necessary tests" So then I called up Alan's ortho guy who did the other surgery. I spoke to his assistant and asked her if the ortho did that particular procedure. She got back to me and said "The doctor says it all depends on how his last emg turned out." Since I have all of Alan's records, this was a simple task. I couldn't fax them to her because all the pages came out black at her end. so I made copies, went to the post office and mailed them to her. His ortho will look at Alan's emg and make his determination. Hey, it's a start. And thanks for the information. Melody
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10-06-2009, 05:48 AM | #3 | ||
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Magnate
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--in determining whether this surgery would have a chance at helping is just where the neuropathy stems from.
Symptoms in the toes can be caused right there, in the foot, the calf, at the knee (the peroneal nerve is particularly prone to compression there), the thigh, the pelvis, the lumbosacral spine, or even higher. A well-done EMG/NCV might be able to pinpoint just where the signal disruption originates from, maybe (if it's big enough to be seen in the larger nerves and is not small-fiber caused). In fact, take a look at: http://emedicine.medscape.com/article/1141734-overview http://www.utmem.edu/gim/smalltalks/le-neuropathy.pdf http://emedicine.medscape.com/article/1234809-overview It would seem to me that such a "triple" release would involve cutting high up on the thigh or near the hip to get at all the origins of the nerve branches there; is that where the surgery is done, or are there several seperate incisions involved? |
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"Thanks for this!" says: | MelodyL (10-06-2009) |
10-06-2009, 06:05 AM | #4 | |||
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Wisest Elder Ever
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Here is an article on the subject:
http://www.podiatrytoday.com/article/7064 This surgery I believe is only done on the foot. This article explains how nerves can swell up (sorbitol builds up in them from faulty glucose metabolism--- I'd avoid sorbitol in all foods too) I know one test for nerve compression is to tap briskly the top of the foot and see it you get a zing to the toes. (I have a positive sign for this). I think tying shoes too tightly also contributes to this. I put up a link recently showing alternate ways to tie shoes, and started doing that myself. I have had great success with foot comfort since doing so. Tying shoes over those nerves, in effect may compress them more if compressive issues are already present. Hypothyroidism also leads to compressive issues. Low thyroid deposits a kind of tissue that swells the ligaments and therefore squeezes the tiny tunnel the nerves go thru. Fluid retention, like from Neurontin/Lyrica or other drugs may do this too.
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10-06-2009, 08:04 AM | #5 | |||
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At one time, the Dellon pre-requisites for consideration and testing to see if one qualifies for the 'Dellon Procedure'..... were in question.
He took no insurance and it seems that just about everyone qualified for his testing procedur, that was costly. His success rates were for decompression type surgeries only. Diabetics were the majority of his patients. He has taken his procedure, taught it, and licensed or franchised it- to surgeons all over the country and has a financial stake in many, if not all of them. He originated it in Baltimore at Johns Hopkins and had (may still be) an independent and separate office for this. I know that at one time he was no longer affiliated with JHH, but that may have changed recently. Posts about successes, on this and other BB's seem to be mixed.
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10-06-2009, 08:34 AM | #6 | ||
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Member
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were the places where John would have had the incisions...so it would be multiple incisions. He said he would go in and "clean" out the debris that has accumulated in the areas.
And from what I understand....post-op is pretty critical to the outcome of the surgery also. Those who ignore post-op procedure don't do as well. |
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10-06-2009, 11:31 AM | #7 | |||
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Wise Elder
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Mrs. D.
I just did the briskly tapping over Alan's right foot (where the pinky toe is). he said it ZINGED. Onward and upward!!! lol Melody P.S. Thanks to ALL of you for the good info. I'm going to read ALL of it. Oh, one more important thing I forgot to mention. When I called the place in New Jersey (that does this triple nerve thing, I asked the nursing assistant. What happens in the foot to cause neuropathy? and she said "Well, the nerves are being strangled" I have no clue if she's right or wrong.
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10-06-2009, 02:14 PM | #8 | |||
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Member
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Dellon has franchised this procedure it seems to me more profit the to help. My POD fly back to his classes and was trained and the first thing he wanted to when he got back was to start cutting on my legs. I don't know if it has a good success. I have both my ankles operated on and had tarsal tendon released. It did some relieve but I got rlds from it.
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Marty Idiopathic PN - diagnosed 1999 |
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