[lailavia]

I had my appt today with that same neuro from the shaking episode he couldn't figure out. My local neuro sent me there for PN testing. JH doc doesn't think I have MS, said to pursue it further locally if I felt the need.

RE: my arm fatigue and all over fatigue, he is doing a small fiber neuropathy test, I beleive the punch biopsy. So at least SOMETHING,,,,,he started rambling about "somatic illnessess" again before he's even done a test..he said there are so many tests that can be done..but basically why bother......I feel like he has already pigeon holed me into some category for some reason.

He did find that I felt cold more on my thigh than foot...and seemed surprised...my feet have been bothering for years...and I was sent by my neuro there....who although doesn't speak much seems to know what to do....He also reordered a tilt table test...and on the slip he had written for reason: questioning dx of dysautonomia. Does that mean he doubts my cardiologist...???? OR is looking for more clues??? he had mentioned that may be causing this a.mm shaking thing, or rather that it needed more treatment....(the POTS) though that is not why i even went today.....anyway I remained calm, unlike my crying episode last time.

.....My arms are so tired at night i have to prop my paperback on a pillow to read.....yet he says that may be somatic...I just don't get it...I wanted a different doctor. I guess I should have pushed harder for that but he had a cancellation and I thought for sure I'd get a bit more of a response..Is this normal????? He did order the two tests...and did say I should have the PN test there as they are good at reading the results there....Maybe I am expecting too much???? Well I didn't cry and something has been done.

OH, and by the way My reg. doc found my Vitamin D level low and that can cause muscle fatigue and weakness!!! I am to go on 50,000 unit pill once a week. Apparently this has been in the news alot lately about the D levels.......supposed to really help....and can slow progression of MS.....or even prevent it.