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Old 05-20-2011, 12:51 PM #1
funkysd funkysd is offline
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Hey MightyB and JohnSmith,

I noticed that these posts are from a long time ago, so I hope you see this post -

Did your condition ever improve? What ended up happening?

MightyB - Reading your post is crazy - it is like reading the experience of the last 3 months of my life.

About 3.5 months ago I had a sinus infection, took antibiotics (amoxycilan), it went way. A week after that I did some E and instead of rolling I felt really shitty (all my friends rolled just fine, so I know the E was fine). I woke up the next morning with what seemed like the flu, thought I just had the flu, whatever.

The flu like illness cleared after a week, but left me with a "brain fog" that persisted (and still does) for a few months. For weeks after the incident I would feel like I was coming up on E from time to time (vividness of colors, jittery feeling, etc) and I have since felt kinda like I am on drugs a little bit.

Furthermore, I have been dealing with headaches, blurry vision in my left eye, abnormal sensations in my hands and feet (that thing you were talking about with the hand/elbow is spot on - if I scrunch my arms I get nervy - weird feeling in hands, and it feels like the nerve under my elbow is more exposed than it once was). Anxiety, depression, trouble concentrating, jitterniness, headaches, muscle tightness/pain in legs and back, blah blah blah.

I am seeing doctors for possible MS, Lyme Disease, ALS, infectious disease - testing for everything, you name it. I've seen 5 docs, and only one thinks I have possible Lyme, other than that they are striking out. The docs don't seem to think anything of my occasional (3 -5 times/year) MDMA use.

Please let me know what happened to you/what you found out. I have been dealing with this for 3 months now and I am FREAKING out!

Thanks
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Old 06-27-2011, 10:24 AM #2
MightyB MightyB is offline
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FunksyD

Im still not in the best of shape, after a year or so I seemed to be improving in all areas, still had the 'nervy' sensations in my elbows, hands and feet but blurred vision and heart palpitations abated slightly. But the last 6 months or so my symptoms have returned only slightly worse this time. Heart Palpitations on a regular basis, blurred vision is back, permanent numbness in one of my toes. From what information I have looked up on the internet it seems that I must've triggered some sort of auto- immune reaction.
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Old 07-18-2011, 04:15 PM #3
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Mighty B,

Thanks for your response, I am sorry that you are going through so much. As I stated in my post, my symptoms are/were very, very similar to yours and the illness followed what seems like a very similar trajectory, so I'm hoping the following information might help you:

After seeing many doctors and having many tests (which all came back negative), my mom suggested I get tested for Lyme disease. I went to a Lyme Literate doctor and had a Western Blot Lyme test (the ones that most doctors do - the Elsa I believe - are highly inaccurate and result in many false negatives, if you've seen many doctors you might have already had this test and gotten a false negative). The Western Blot came back positive for Lyme disease and I was put on very aggressive antibiotic therapy and my symptoms have greatly improved over the course of the last 3 - 4 months. After feeling like my life was over for 3+ months, like I would never get back, learning that the MDMA was not the actual problem, that I hadn't done some irreparable damage to my brain, and that there was an actual bacterial infection to blame for my illness, I must say that I was greatly relieved. That relief continued when I began treatment and actually started to get better.

According to my doctor, I will likely be treated for another 3 - 4 months before I am completely free of Lyme.

Lyme disease is a bacterial infection that you contract from ticks. I am very active and outdoors a lot, so that is likely how I contracted Lyme. I do remember being bitten by ticks in the past, but they are small, so some people who have Lyme never remember being bitten. The Lyme bacteria are a member of the spirochete family (like syphilis) and are spiral shaped, therefore they are very good at burrowing into soft human tissue such as joints, muscles, nerves, the eyes, and brain. When someone is infected with Lyme the bacteria burrows into such places and releases toxins, and these toxins create all sorts of problems - including all of the problems that you listed as having. Lyme has been known to mimic hundreds of diseases and has been associated with over 200 symptoms!

I told my doc about the MDMA and the antibiotics I was on before I got sick and he had a relatively straight forward reason for why I, seemingly all of a sudden, caught Lyme disease (in the dead of winter). Young people, who have strong immune systems, can catch Lyme and show no symptoms for a very long time. The immune system of the healthy person suppresses the Lyme, but it often times cannot eliminate it completely. Once the immune system is compromised (for me it was a combination of the stress and travel involved in a new job, lack of sleep, and a solid bender capped by a night of MDMA use) the Lyme is able to take hold and start wreaking havoc on the body. At this point the only way to get better is to treat the Lyme.

I am not saying you have Lyme, as I am not a doctor and I really don't know the ins and outs of your personal story. I am saying that it sounds like you and I went through the same thing, my problems were caused by Lyme disease, and yours might be too. If you haven't, I would recommend you at least look at some Lyme information and see if it sounds like you might be dealing with it. If you do end up suspecting Lyme, get in touch with a Lyme Literate Doctor (most doctors are NOT Lyme Literate and will dismiss the symptoms as being in your head) and get a Western Blot test done. Furthermore, don't believe what the CDC has to say about Lyme. The CDC board that governs what is classified as Lyme is in the pockets of the insurance companies (who do not want to pay for Lyme treatment) and they have done all they can to prevent the majority of Lyme diseases cases from being treated (I would have never believed this if I didn't have to deal with this myself, but it is a sad truth)

For reliable information about Lyme disease check out the "International Lyme and Other Associated Diseases Society" website

All the best!
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Old 11-21-2011, 04:03 PM #4
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Thanks for the reply, I will look in to getting tested straight away although Im not sure Lyme is the problem. Out of interest what are your hangovers like after drinking alcohol since your symptoms started, I have found that the day after a drink my hangovers seem ALOT worse than before also heart palpitations greatly increase??
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Old 06-02-2015, 02:55 AM #5
Chelsb212 Chelsb212 is offline
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I have the exact same story no joke. I am an active 24 year old girl I was very healthy until I Went to vegas did molly woke up with numb hands mostly on the outer two fingers, getting progressively worse, weak, blurry eye, twitching, muscle and back pain. MRI, cat scan, blood work, heart checked-ALL good. This has been going on for 2 and a half weeks now And i don't feel like its getting better. Its giving me extreme anxiety which of course in return is making it worse. Ive been to emerge 3 times and no doctor can figure out what is wrong with me. Have an apt with neurologist in a few weeks, but please if you see this and have any update on how your doing please let me know! Thanks 😊
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Old 06-02-2015, 07:06 AM #6
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Hi Chelsb212,

Yes, you WERE a healthy 24 year old before you ingested this poison. Don't worry, I am not going to preach, I did my fair share in my youth but those were different days - still dangerous, but nowhere near as dangerous as today.

Do yourself a favour and read this, it will tell you what you MAY have taken as well as Molly:

http://www.drugabuse.gov/publication...stasy-or-molly

As to your symptoms, the first thing you have to do is admit possible cause, then your Drs have a starting point and reason for you presenting. That way treatment can be effectively targeted to your best benefit. Some of your symptoms match up with known problems caused by molly and the common contaminants.

Hopefully, as it has only been a short time, your damage is not permanent and treatment will bring you back to the level a 24 year old should enjoy, albeit wiser. I sincerely hope that is the case.

Dave.
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Old 06-02-2015, 09:15 AM #7
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Welcome Chelsb212.
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