NeuroTalk Support Groups - new member sensory peripheral neuropathy

NeuroTalk Support Groups (https://www.neurotalk.org/)

- Peripheral Neuropathy (https://www.neurotalk.org/peripheral-neuropathy/)

- - new member sensory peripheral neuropathy (https://www.neurotalk.org/peripheral-neuropathy/107083-sensory-peripheral-neuropathy.html)

did the chelation help?

Quote:

Originally Posted by echoes long ago (Post 585554)

it wasnt for quite a period of time before i had any type of blood tests for toxins. Even though i started to show symptoms of PN about a month later, I had no idea of what was going on, first thinking i had an ingrown toenail, then later that my back was the problem. I do have quite a few herniated and bulging discs. It took two years before i realized that i had PN (after researching online numb painful feet and finding the braintalk website) and a few months after that that a diagnosis was made. I was dealing with numerous respiratory infections during those years over 25 of them the first two years alone and was trying desperately to keep working, i had young children. Because of the period of time elapsed and nothing showing in blood then i could never get a doctor to initiate a chelation though i did do one outside of the main medical establishment. This goes back to the other thread and you and others helped me in ways you will never know.

Did the chelation help and how did you get someone to do it outside of the medical establishment?

it hasnt helped and there are people here who do that and consult with a doctor, it doesnt have to be done by a doctor and since they wouldnt do it......

Quote:

Originally Posted by flyfishobie (Post 585157)

It is so nice to find a site like this. I am 65 and have sensory peripheral neuropathy of unknown origin. It began 10 years ago in my left big toe and over the years has progressed above my ankles. There appears to be no motor impairment, but lately have begun to experience numbness in my finger tips. I am a psychologist and had to retire from my practice a few years ago because of the level of discomfort I experienced from sitting for long periods. I take gabapentin and it does provide some relief from the tingling. I have no stabbing pain. However, there is muscle tissue wasting in my feet.

I have lost the sense of feeling in my feet,but am able to walk because of pressure feedback. I have always stay in excellent shape through weight training and aerobics. I can no longer run, but do hard training on a recumbent bike. I do weight exercises to strengthen my calves and ankles and it has really helped. Maybe that has prevented or postponed motor nerve involvement. I wanted to also share with the group that I do balance training with the Wii Fit games and I definitely believe that it helps build new neuropathways for improved balance. The games are also fun with simulated ski jumps and slalom runs as well as other balance games.
I also use a balance board to strengthen those pathways.

Has anyone else out there developed a similar type of neuropathy that started in their late 50s and is primarily sensory. Thanks for listening

Hi Jim,

I was recently diagnosed with sensory peripheral neuropathy. I am 62 years old and a registered nurse. My symptoms started about 3 years ago with decreased sensation on the bottom of both feet. Very mild but noticeable. It has gradually increased. I am trying to find out the cause. So far the toxin, diabetes and other lab work has been negative. The neurologist wanted to put me on medication but I prefer to find a cause if possible.

What type of orthotics did you find helpful? Was it a prescription orthotic? Does anything else help? I also work out and keep physically fit. Hopefully this will help. Is there medication that can halt the progression?

Thanks for your information.

Cecelia

also in the same boat

Hi to all

Mine started at the age 50, 4 years ago, with strange feellings in my toes, both side. within hours it spread all over my body including hands and face. Today I have a certain dgree of numbness all over my body, but the burning are only in my legs. I also have pain while walking. Do gym in order to keep my body shape,but what I found was that I shouldn't work hard.

For now the DX is idiopatic small fibers sensory neuropathy - can be from toxins since I worked with chemicals in a lab, but can't be improove.

amit

Is your neuropathy large fiber?

Hi Flyfishobie,

I recently joined the forum and I have just come across an old post of yours and your condition sounds very much like mine. I was diagnosed with "Large Fibre Sensory Polyneuropathy" recently after a nerve conduction test. I am still trying to find out if this condition is progressive eg. feet to hands etc.

I would appreciate any feedback on this. Many thanks, Pinksweetpea