[Jfhbiff]

Hi. Was told by my neurologist on Thursday that I have evidence of sensory neuropathy in my legs after an EMG and nerve study. Scheduled to have an MRI and spinal tap next week to look for root cause. I looked up information medical sites and it mentions symptoms of pain. I don't have any pain at all. I have leg weakness and muscle twitching. I have trouble walking. No pain at all. It doesn't make sense that I don't have any pain. Should I be feeling pain, or is it likely that I have a different problem?

Thank you,
John

[IH8PN]

Sorry to hear about your circumstances. Suffering with painful neuropathy has given me a new level of empathy for other peoples struggles. I was just diagnosed with neuropathy in my left arm. Not painful, just occasional numbness. So yes it is somewhat common to have non painful neuropathy that causes weakness when the nerves and muscles don't communicate properly.

On the other hand, the neuropathy in my feet is very painful. Enough to contemplate cutting them off just to get relief and even cause suicidal ideation.
For your sake I hope you never get pain from this condition. Good luck.

[Jfhbiff]

Originally Posted by IH8PN

Sorry to hear about your circumstances. Suffering with painful neuropathy has given me a new level of empathy for other peoples struggles. I was just diagnosed with neuropathy in my left arm. Not painful, just occasional numbness. So yes it is somewhat common to have non painful neuropathy that causes weakness when the nerves and muscles don't communicate properly.

On the other hand, the neuropathy in my feet is very painful. Enough to contemplate cutting them off just to get relief and even cause suicidal ideation.
For your sake I hope you never get pain from this condition. Good luck.

Thank you. Sorry you are having pain. Sounds like I am lucky to have no pain

[Kitt]

Originally Posted by Jfhbiff

Hi. Was told by my neurologist on Thursday that I have evidence of sensory neuropathy in my legs after an EMG and nerve study. Scheduled to have an MRI and spinal tap next week to look for root cause. I looked up information medical sites and it mentions symptoms of pain. I don't have any pain at all. I have leg weakness and muscle twitching. I have trouble walking. No pain at all. It doesn't make sense that I don't have any pain. Should I be feeling pain, or is it likely that I have a different problem?

Thank you,
John

Anyone in your family have similar problems? Thank you.

[jenng]

Sensory neuropathy is usually a progressive disease. You likely are showing electrical changes that haven't shown up clinically yet. My first EMG/NCV was in 2005, at that time I only had very mild tingling in my feet & nothing else. Real pain only showed up about 18 months ago for me. Everyone's definition of pain and their tolerance to it is different. What did it show about your motor nerves?

This is a great site with lots of information & helpful people. At least it's nice to know you aren't alone.

[Susanne C.]

I also started with other symptoms, weakness, heaviness in legs, numbness, and balance difficulties. I had clumsiness and poor coordination from early childhood as mine is hereditary, which often presents without pain. Later, when the nerve damage is more advanced and the muscles are weaker, the pain sets in. At first I attributed it to varicose veins. Later the burning and zapping started. Now I have sharp pains in my ankles and legs that have to be controlled with medication in order for me to function. I have visible muscle wasting.
Not everyone with a hereditary neuropathy experiences severe pain, even the progress of other neuropathies is a mystery and you may stay as you are for a long time. For some the numbness and pins and needles alone are a serious trial. Others adjust. Everyone is different.
I hope that they find a treatable cause for you.

[Jfhbiff]

Originally Posted by Kitt

Anyone in your family have similar problems? Thank you.

No. I think I am the lucky first.

[Jfhbiff]

Originally Posted by jenng

Sensory neuropathy is usually a progressive disease. You likely are showing electrical changes that haven't shown up clinically yet. My first EMG/NCV was in 2005, at that time I only had very mild tingling in my feet & nothing else. Real pain only showed up about 18 months ago for me. Everyone's definition of pain and their tolerance to it is different. What did it show about your motor nerves?

This is a great site with lots of information & helpful people. At least it's nice to know you aren't alone.

Thank you jenng. He said there were no issues with the motor nerves.

[Jfhbiff]

Originally Posted by Susanne C.

I also started with other symptoms, weakness, heaviness in legs, numbness, and balance difficulties. I had clumsiness and poor coordination from early childhood as mine is hereditary, which often presents without pain. Later, when the nerve damagis more advanced and the muscles are weaker, the pain sets in. At first I attributed it to varicose veins. Later the burning and zapping started. Now I have sharp pains in my ankles and legs that have to be controlled with medication in order for me to function. I have visible muscle wasting.
Not everyone with a hereditary neuropathy experiences severe pain, even the progress of other neuropathies is a mystery and you may stay as you are for a long time. For some the numbness and pins and needles alone are a serious trial. Others adjust. Everyone is different.
I hope that they find a treatable cause for you.

Thank you Susanne. Sorry you are going through this.

[birdman]

Enjoy freedom from pain while it lasts. I hoped my freedom from pain lasted longer but recently my symptoms have started ramping up. From what I've read pain can come for a while and disappear for years only to return even worse and stay or retreat again. There doesn't seem to be anything that works 100% but many have reported good results from various things. I hope yours stays free from pain. I envy you.