Originally Posted by mgerandc

Joshua,

I am a member of the Neuropathy Treatment Centers of America, a group of doctors who treat pn symptoms. This care is not for everyone, but it can be a big help in dealing with the symptoms of pn, even if it means slowing down the progression of the symptoms. I see that you are in Indy. If so, i think there are a couple of doctors in that area. I actually am in South Carolina, but I thought I'd share this with you. If you are interested in getting their info, reply to this post.

Good Luck.

Mike

Originally Posted by JoshuaY46012

Hi Guys,

This is my first post, I am new to the forum! I decided to sign up considering I've been newly diagnosed as of last week and I am so lost!

I'm in constant pain, burning, lacerating, electrical pains. I was diagnosed with Small Fiber Neuropathy and Large Fiber as well in both legs.

I was diagnosed with Small Fiber with the use of an EMG/NCV. I was told that it wasn't possible to diagnose SFN with an EMG? I had absent latency in the plantar sensory nerves in the bottom of both feet. I'm seeing a Neurosurgeon so I would assume he knows what he's doing!? Anyone else diagnosed this way? I have a Quantitative Sensory Exam as well with the pin-prick and feather too.

How do you guys deal with your pain? I'm currently taking 600 mg of Neurontin 3x a day, 50 mg of Ultram 4x a day and 0.5 mg of Ativan once daily as needed.

My doctor seems to think my cause is Idiopathic, he hasn't found any reasons as of late, he says all we can do as of now is treat the symptoms?

Thanks so much,
My name is Josh, I'm sure I'll be a continuing member here!

Originally Posted by JoshuaY46012

Thank you SO much for all the help, I've been dealing with the pain for quite some time and it's gradually gotten worse.

I'm only 21, I work in a Health and Fitness Center at the service/billing desk, I don't drink, I don't smoke, I don't use any recreational drugs, I do take my medicine, Neurontin, Ultram and Ativan. I've had both tested, I know the B12 was 1,000 or so, and the Vit D was normal. I've had ANA, CBC, TSH, RA Factor, IFE Protein Test (?) and a few others I can't think of, I've had an Evoked Response (SSEP), Brain MRI, Cervical MRI, Lumbar Xray which were all normal

My hands occasionally burn, not like the feet. The electrical pains I do have in the hands and arms, I do drop stuff A LOT! I'm seeing a Neurosurgeon, not because of the spinal column, but because he also deal with Neuro. patients with other complications and he seemed like a good idea.

Now with the EMG/NCV it showed NO response on the "Medial Plantar Sensory Nerves" on the bottom of my feet, the doctor said those indicated Small Fiber, if those had no response is it because they're "dead" and is that a pointer to SFN? This is all just so confusing.