| FAQ/Help |
| Calendar |
| Search |
| Today's Posts |
|
|
11-10-2009, 10:21 AM
|
#1 | |||
|
||||
|
Wisest Elder Ever
|
When a really young person comes here, with no triggers, no toxins, no diabetes risk, etc...I have to wonder about
hereditary types of PN. Charcot Marie Tooth, is one type. Also I wonder about vaccines. Have you had vaccines before the symptoms started? Vaccines can set off a cascade of inflammation which affects the nervous system. One form of food poisoning...by Campylobacter, can also affect the nerves. This can come from poorly cooked chicken. I believe that there are some seafood toxins as well.
__________________
All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei ************************************ . Weezie looking at petunias 8.25.2017 **************************** These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
|
|||
|
 Reply With Quote
|
| "Thanks for this!" says: | JoshuaY46012 (11-10-2009) |
|
11-10-2009, 10:38 AM
|
#2 | ||
|
|||
|
Grand Magnate
|
Does anyone in your family show symptoms similar to you? Have you ever had DNA blood testing for Charcot Marie Tooth (CMT)? They can now test for 22 + types of it. And even if you do not test positive, it does not mean that you do not have it.
CMT symptoms vary greatly even within the same family. Symptoms can become evident when you are young, old, or in-between or they may never be that evident. www.athenadiagnostics.com has a program to help with the cost of testing, which is expensive if you have to test for all the types they can test for. Your insurance might cover some of it as well. Hope you find some answers.
__________________
Kitt -------------------------------------------------------------------------------------------------------- "It is what it is." |
||
|
|
Reply With Quote
|
|
11-10-2009, 02:24 PM
|
#3 | ||
|
|||
|
Junior Member
|
Quote:
No, no family history what so ever! When you have an EMG what shows up? What does your reports suggest? I understand that you said it's different in everyone, do you have to have foot drop? I'm pretty sure I have absent reflexes in my hands as well. So far it's idiopathic, he said we must look at rare occurrences. How is your CMT handled and treated? How did they find it in your case? I have not had any immunizations other than a flu shot in 4 years. The flu shot I got after all this has been discovered as well. |
||
|
|
Reply With Quote
|
|
11-10-2009, 03:12 PM
|
#4 | ||
|
|||
|
Grand Magnate
|
This site explains an EMG. There is also an NCV test.
http://www.medicinenet.com/electromy...cle.htm#2whyis http://www.medicineonline.com/articl...city-Test.html CMT is different for everyone. There are so many types of it. It is the most common "inherited" neurological disorder. Much research is being done. There are rare occasions where a mutation can turn up. Otherwise, it is inherited. No, you do not have to have foot drop. You can have high arches, flat feet or normal feet. It depends on what muscles are affected. Your hands and arms do not have to be affected but usually does happen later on. Or for some people it is right away. Your lower legs (peroneal muscle) and feet usually are affected. If bad enough, that's where foot drop comes in and the slapping gait. It used to be called Peroneal Muscle Atrophy. Another name for it now is Hereditary Motor Sensory Neuropathy (HMSN). I can trace CMT way back in the generations. It did affect most everyone differently. I knew I had it before it was confirmed. There is no cure/treatment for CMT at the present time. You just deal with the symptoms and try to lead a healthy lifestyle. Exercise but not to extremes or CMT can be exacerbated. Your body will tell you. There is a medical alert list which lists what drugs not to have, etc. There is no magic bullet, supplement, medication or the like that will stop it at the present time. CMT is progressive no matter what you do.
__________________
Kitt -------------------------------------------------------------------------------------------------------- "It is what it is." |
||
|
|
Reply With Quote
|
| "Thanks for this!" says: | mrsD (11-11-2009) |
| Reply |
|
|
Similar Threads
|
||||
| Thread | Forum | |||
| Progression of small fiber neuropathy | Peripheral Neuropathy | |||
| Small Fiber Neuropathy | Peripheral Neuropathy | |||
| small fiber sensory neuropathy | Peripheral Neuropathy | |||
| small fiber neuropathy-how do you know? | Peripheral Neuropathy | |||
| Small fiber Neuropathy | Peripheral Neuropathy | |||
Hybrid Mode
