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11-10-2009, 10:38 AM
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Grand Magnate
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Does anyone in your family show symptoms similar to you? Have you ever had DNA blood testing for Charcot Marie Tooth (CMT)? They can now test for 22 + types of it. And even if you do not test positive, it does not mean that you do not have it.
CMT symptoms vary greatly even within the same family. Symptoms can become evident when you are young, old, or in-between or they may never be that evident. www.athenadiagnostics.com has a program to help with the cost of testing, which is expensive if you have to test for all the types they can test for. Your insurance might cover some of it as well. Hope you find some answers.
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Kitt -------------------------------------------------------------------------------------------------------- "It is what it is." |
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11-10-2009, 02:24 PM
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Junior Member
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Quote:
No, no family history what so ever! When you have an EMG what shows up? What does your reports suggest? I understand that you said it's different in everyone, do you have to have foot drop? I'm pretty sure I have absent reflexes in my hands as well. So far it's idiopathic, he said we must look at rare occurrences. How is your CMT handled and treated? How did they find it in your case? I have not had any immunizations other than a flu shot in 4 years. The flu shot I got after all this has been discovered as well. |
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11-10-2009, 03:12 PM
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Grand Magnate
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This site explains an EMG. There is also an NCV test.
http://www.medicinenet.com/electromy...cle.htm#2whyis http://www.medicineonline.com/articl...city-Test.html CMT is different for everyone. There are so many types of it. It is the most common "inherited" neurological disorder. Much research is being done. There are rare occasions where a mutation can turn up. Otherwise, it is inherited. No, you do not have to have foot drop. You can have high arches, flat feet or normal feet. It depends on what muscles are affected. Your hands and arms do not have to be affected but usually does happen later on. Or for some people it is right away. Your lower legs (peroneal muscle) and feet usually are affected. If bad enough, that's where foot drop comes in and the slapping gait. It used to be called Peroneal Muscle Atrophy. Another name for it now is Hereditary Motor Sensory Neuropathy (HMSN). I can trace CMT way back in the generations. It did affect most everyone differently. I knew I had it before it was confirmed. There is no cure/treatment for CMT at the present time. You just deal with the symptoms and try to lead a healthy lifestyle. Exercise but not to extremes or CMT can be exacerbated. Your body will tell you. There is a medical alert list which lists what drugs not to have, etc. There is no magic bullet, supplement, medication or the like that will stop it at the present time. CMT is progressive no matter what you do.
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Kitt -------------------------------------------------------------------------------------------------------- "It is what it is." |
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| "Thanks for this!" says: | mrsD (11-11-2009) |
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