Hi All.

Last Thursday, Alan and I went into NYC to the CBS building. They hold the Peripheral Neuropathy Support Group meetings every 3rd Thursday of each month.

I brought along my camera. I only got 3 photos but at least you can see the size of the room and the immense table we all sit around.

I shall bring my camera next month for the next meeting. It's December 17. If you wish any info, just contact me.

I put the photos in my photo album.

Here's the link to it. The first three photos are the ones I took at the meeting.

http://neurotalk.psychcentral.com/album.php?albumid=30

Melody

--over to one of these support group meetings, Mel.

At least they don't have lots of cookies, right?

I used to walk into the Cornell-Weill Center for Peripheral Neuropathy, which is housed in quite a luxurious suite of offices, with lots of amentities (including a cable TV room, which is where a lot of the IVIg patients hung out during infusions), and constantly chide them about how there were always cookies and pastries people had brought in, which, considering the number of diabetics in the place, didn't seem to be a well-thought-out idea . . .

GLEN!!!! THEY DON'T HAVE COOKIES???? Are you kidding?

I should have taken a picture of the left side of the room. It's like ONE LONG BUFFET TABLE. Plates of cookies. (I think they are Pepperide Farm). Then to the right, there are silver carafes of steaming coffees, flavored, de-caf, etc. Hot boiling water for Tea. All kinds of international teas. And bowls of fruits.

And to the left of the table, there are bottles of teas, cans of soda, bottles of water, YOU NAME IT, THEY SERVE IT.

But I always make my muffins and I bring a tin of my muffins to this meeting each month. They last approximately one minute.

Last Thursday I made a batch of Peanut Butter, Banana Chocolate Chip.

Believe me, YOU SHOULD HAVE MADE THE MEETING.

Now sometimes I bring sugar free stuff, but I figure, one muffin isn't going to hurt anyone. I have to hit Alan over the head not to take more than one muffin.

I sometimes make blueberry muffins (with fresh blueberries). But the ones I made this past Thursday,

THAT WAS A HALLELUJAH MOMENT!!

I never have any left over.

You should come next December 17th. I can never make the promise that I or Alan will most definitely be there because sometimes things happen (like the Access a Ride doesn't show up, or Alan has a foot thing going on, but oddly enough I have only missed one or two meetings in a few years.

It's a good group with lots of diverse opinions on everything from IVIG to what kinds of creams work.

So come if you can. At least you'll get a muffin.

lol

Melody

kind of like having seagrams cater an AA meeting or OTB a gamblers anonymous meeting

Well to be perfectly honest, this is NOT a diabetic neuropathy support group meeting. People who come to this meeting have various reasons for their neuropathy. Only a few have diabetes.

The rest have CIDP, neuropathy from Chemotherapy, neuropathy due to compressed discs in their backs, alcohol related neuropathies, and many, many, have idiopathic. We don't get the same number of people coming each month because of weather, and some people can't walk that well, or have balance problems.

But when a lot of them show up, it's like a big get-together. It's usually on the 33rd floor but lately it's been held on the 34th floor.

That law firm (who donates the big room and gives us all the stuff on the table), well, it's very very kind of them to do this.

I've been to NAMI meetings and Gamanon meetings and all they had was a bag of chips and a big thing of coffee (with a spigot), and various cakes. But the meetings are held in small rooms in churches.

This?? Well, the first time I went to a meeting of this support group, Alan and I looked at each other and said "Whoa, this ain't no NAMI meeting".

BIG difference.

But honestly, it's not where the meeting takes place, it's what we get from going to the meetings, and what we pass on what we've learned. For example, because I was helped by Methyl B-12 (which I learned from this forum), well I gave this presentation about Methyl B-12.

You'd be surprised at how many people are now taking Methyl B-12.

Melody

wow, that looks more like a board meeting than a support group. I'd definitely come to any support group you were in - I love muffins.

cheers
raglet