just an fyi - no, this is not the same as nucleolar, this is just the way they test the ANA (which stands for anti nuclear antibody). The flourescence is part of the way they make the count of of the ANA titre - I think it is about the ANA's flourescing, but don't quote me on that.

cheers

raglet

Actually, I am not currently using anything because the condition seems to flair up and then retreat again. For me it is annoying but so far hasn't reached the stage where I went in and got medication for it. I've kind of neglected some of my other medical problems while dealing with my PN and my hypertension.

Two different labs did an ANA within a month. One says nucleolar at 1:160/ speckled 1:1280, and the other finely speckled and nuclear fluorescence seen to 1,280...(seems rather confusing.)

The C 4 is low.

Scl 70 neg, SSA neg, SSB neg. anti-smith neg. This was basically what they did.

One test revealed an RNP getting near the limit but still normal.

C reactive protein is normal and high on one.

It is one of those labs you get that basically tells you something autoimmune is going on, but does not help identify it.

My lip biopsy is infiltrated with lymphocytes, and they basically said it was SjS based on that. I feel I am basically sitting in the undifferentiated connective tissue disease group. I guess I have to wait for it to evolve more.

I do have all the SjS symptoms and my mouth is badly inflamed right now. That is not the worst of it, the other stuff, constitutional symptoms, and PN are the thing that concerns me most....feeling sick right now.

Thanks for all your assistance.