NeuroTalk Support Groups - axonopathy.. anyone

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NeuroTalk Support Groups (https://www.neurotalk.org/)

- Peripheral Neuropathy (https://www.neurotalk.org/peripheral-neuropathy/)

- - axonopathy.. anyone (https://www.neurotalk.org/peripheral-neuropathy/110179-axonopathy.html)

ds010z5045

08-05-2010 06:31 PM

for diagnonsense

diagnonsense it sounds like you suffer from HMSN Type 2 (Heriditory Motor Sensory Neuropathy Type 2 Axonal) Hope thats helps.

Kitt	08-05-2010 07:41 PM

Quote:

Originally Posted by ds010z5045 (Post 682365)

diagnonsense it sounds like you suffer from HMSN Type 2 (Heriditory Motor Sensory Neuropathy Type 2 Axonal) Hope thats helps.

HMSN is another term for CMT. And there are many types.

cyclelops

08-06-2010 08:50 AM

This may be a dumb question, but, are EMGs abnormal in any of the CMTs? Or is it strictly small fiber and only found on skin biopsy?

Electron

08-06-2010 08:54 AM

My PN is apparently hereditary since my mother has it too, although the nature of our pain is different. At Mayo they diagnosed me with small-fiber sensory neuropathy. I have no motor involvement. It sounds like CMT (Charcot-Marie-Tooth disease) generally has motor involvement. Does it always? Is it still possible that I have CMT with no motor involvement. The pain started slow and has progressed over 7 years.
Electron

Kitt	08-06-2010 09:22 AM

Quote:

Originally Posted by cyclelops (Post 682528)

This may be a dumb question, but, are EMGs abnormal in any of the CMTs? Or is it strictly small fiber and only found on skin biopsy?

In CMT1's EMG's are abnormal. In CMT2's they can be almost normal. Here is a site:

http://www.charcot-marie-tooth.org/a.../diagnosis.php

Kitt	08-06-2010 09:26 AM

Quote:

Originally Posted by Electron (Post 682529)

This site might help you.

http://www.charcot-marie-tooth.org/a...t/symptoms.php

Symptoms of CMT vary greatly even within the same family. The same type that is diagnosed in a family member is what the rest would have if they do inherit it. Symptoms can become evident when you are young, old, or in-between. Or they might not ever be that evident. CMT is a complicated syndrome.

Kitt	08-06-2010 09:29 AM

At the top of the forum

there is a thread concerning PN, tips, etc. In that thread I have information concerning CMT.

smae	08-06-2010 09:33 AM

According to Mayo, this is what I have: "Length-dependent sensory axonal peripheral neuropathy due to #2 and #3" Unfortunately, I don't have a clue what any of that means. -sigh- I just want a simple explanation that I understand without words like axonal and sheaths--I have NO idea what those are and as much as I have researched them, I can't comprehend it.

Kitt	08-06-2010 09:41 AM

Quote:

Originally Posted by Sarah Mae (Post 682544)

Hi, Are you talking about sheaths as in myelin sheaths. Myelin sheaths wrap around the nerve. Axonal is the nerve itself.

smae	08-06-2010 09:43 AM

Yeah, that's what I'm talking about. Thanks... those are simple terms. I want so badly to understand exactly what my diagnosis means... but I can't break it apart and figure it out because it just doesn't make any sense... PN is so complex compared to all the other medical problems I have--I have no trouble understanding those.

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