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Old 12-17-2009, 01:43 PM #1
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Default Do I suffer from CHRONIC Neuropathic pain?

I beg you to please help me clear my mind. I’m getting nuts. It seems like neuropathic pain has all symptoms from what I read on the net, specially in Portuguese.

I need to know if my pain is real or is psicossomatic. Every doctor I’ve been to say my pain is from my head and it is not typical from Small Fibers Neuropathies. I only heard about NP after the initial symptoms (3months ago) So:

1st-I did two EMGs. They were both normal. However I did them 3 months after my initial symptoms;

2nd- I first start feeling burning sensations on my elbows and hands. They were dued to a stupid exercice with dumbbells at home. I felt electric shocks and a pain in my hands when lifting the dumbbells. I had the stock glove sensation on my hands and arms, but I don’t have it anymore. Pain didn’t started on my feet… in fact I don’t have any pain on my feet…

3ª – My first symptoms were maximized one month after my initial symptoms with a stupid massage (very deep) to my whole body, and by 2 MRIs without contrast. From these MRIs I also got a dermographism to my skin;

4 – I can describe my pain nowadays as follows: “Intermitent, and it seem to appear with motion”; “it hurts a bit when someone gives me a friendly slap on shoulders, back, etc…”; “I feel a salty sensation on my body and arms sometimes, if I wear to tight clothes”; “I have stiff hands sometimes since the beginning”

5º- this “Pain” is slowly decreasing.

6th-I don’t have any disease that could cause SFNP. And the pain did not start on my feet.

7th-My pain is eased by “anxiety” pills such as diasepan.

8th When I am about to wake up, I remember the “pain” and I begin feeling it trough my whole body.

I have this problem since 6 month ago.

So I would like to hear your opinion:

Do you think my problem is mostly psycossomatic?

Do you think My nerves are regenerating thus the decreased of “Pain”

Thank you and please put true or false for each item and let me know your intuitive opinium…please!!!!

PS: This is my last thread asking for help...from now on I only help others...
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Old 12-17-2009, 02:06 PM #2
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Lightbulb

I don't think your pain is psychosomatic. I think you have inflammation and some sort of reaction to the injury, that will take time to heal.

I know for myself, I have various times at night when my feet hurt and then don't. I can get up in the night to use the bathroom and my feet do not hurt then. They most often hurt/burn when I lie down for sleep. It seems they are on a clock.

Also some foods tend to make the burning worse for me. This is an individual thing. But my triggers are monosodium glutamate found in foods, (called MSG) and also potatoes. (that sounds odd, but it is true-- I get burning from them if I have them that day) . It took me a LONG time to find the food connection.

Some things I discovered, helped my feet quite a bit. One was dextromethorphan found in cough products. I had a terrible bronchitis last Feb and took quite a bit of cough medicine, and the DM was very effective for my feet. This may not work for everyone, but DM is a NMDA pain receptor blocker, and MSG is a stimulant for that receptor. So by removing triggers and doing a mild block, I accomplished quite a bit and learned alot.

Filipe, you might want to keep a journal when your pain is worse, and when better. Include everything you put in your mouth and swallow that day. You may find some trigger of your own.

Some injuries take a long time to heal. Tendons especially. And the shoulder joints are very complex, and the shoulder blade is kept in place by fascia and tendons. So you might just have to wait longer.

Valium is a muscle relaxant, and also a mild antiseizure drug, and may be working that way for you. It is also very habit forming and symptoms can return with a vengeance when you stop using it. It will cloud the whole healing process.

If you can get ahold of Lidoderm patches, they would be worth trying. If they block the pain for you when applied over the shoulders along the back where the strain originates, it will tell you which nerves are affected. You can block the signals and eventually they will settle down. I had a nerve in my thigh damaged from a C-section that stopped finally shooting after 14 days of using the Lidoderms (which had just come out on the market). I still use them for my lower back if it flares up, and sometimes on my knees, which have arthritis.

I don't think anyone here can diagnose you. The term chronic neuropathic pain, means nerves that are diseased (pathology). You don't know if they are "diseased" or just sending signals out from an injury. All pain is sent in the body via nerves. All sensation is sent by nerves. And movement is mediated by nerve transmissions. I think it is probably more accurate to say you have chronic pain of unknown origin at this time.
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Old 12-17-2009, 05:28 PM #3
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" I think it is probably more accurate to say you have chronic pain of unknown origin at this time."

But is it neuropathic? Are all Small Fibers neuropathic pains Chronic? Or is it Chronic only for the people that suffer from diabetes or AIDS, etc...? Or for people which the pain started on the feet? I had several cuts with knifes and never had any neuropathic pain before. Wasn't I damaging my small nerve fibers on those occasions?
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Old 12-17-2009, 05:52 PM #4
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Yes, a cut damage small fibers and they grow back.

As far as if this is in your head, what do you think?
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Old 12-17-2009, 07:02 PM #5
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filipe the truth is that no one knows. The symptoms that people experience vary from person to person even with having the same small fiber neuropathy, or long fiber neuropathy, axonal or demyelinating. No one can predict wether a particular person will have a lot of pain, a small amount of pain or no pain or how long the pain will last. No one can predict wether pain will be acute or chronic , wether it will get worse or get better. Due to individual variations these are impossible to predict. That is why no one is able to answer your questions. No one knows.

I think Mrs. D has given you excellant advice about the use of ice, salonpas patches or lidoderm patches, supplements and givng it time to heal.
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Old 12-17-2009, 07:08 PM #6
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Filipe,

I have to wonder why you are pushing us so much here?

Many people have answered you. Echoes has stated it well.

If this is your first time that you have to deal with injury and pain, you need to know that you must learn how to DEAL with it in a constructive positive way. Life is full of pain... every single person on this forum deals with pain, and has done so for many years in most cases. Regardless of the cause of your pain, you will have to deal with yours also.
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Last edited by mrsD; 12-18-2009 at 07:13 AM. Reason: fixing spelling
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