[MelodyL]

Alan went to the neuro yesterday and she said (after examining him), she said "I'm stopping the IVIG", (for the next 4 months), and she asked him questions about his balance. He told me he told her that sometimes he's a bit wobbly (I asked him what this means and he said: "sometimes I'm walking straight and then I'll lean to the side". I asked him "does this happen often? and he said "on occasion".

In fact we just came back from a shopping trip and I just asked him "did you wobble?" and he said "No, but I always concentrate when I walk just to make it NOT happen" (I had no clue this was happening by the way), I've never noticed him wobbling or anything to that effect.

So she said "Let's see what happens in the next 4 months" He also said "My right food has a worse case of neuropathy than my left foot"

And she did tell you "you definitely do not have CIDP".

Now all I know is that 4 or so years ago, when he began going to Dr. Theirl, the chiro-neurologist, this man became a different person. He went to the gym, (lifting weights, but no treadmill), and he seemed to be much more lively. I just asked him this question: 'Alan, when you went to the gym, and lost 20 lbs, did it have any affect on your neuropathy?" and he said "not really, I always had the pain"

So exercising does not increase nor does it decrease the neuropathy pain in his feet. He says the IVIG did help his balance. So I guess we will see what happens when he does not have it for 4 months.

So here's my question to you people who have had IVIG and then stopped.

Is there anything he can do to help his balance? Like doing balance exercises?? He hasn't fallen in quite a while, thank goodness for that.

I don't know of any supplements that are good for balance problems. (Honestly, I've never seen any balance problems, so it's not like he walks around drunk or anything like that). But he notices it.

So while I know we'll never know why he has neuropathy, I want to learn if there is anything a person can do to improve one's balance.

Thanks much

Melody