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Old 01-16-2010, 04:21 PM #11
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I found this site if it helps.

http://www.drugs.com/sfx/mirapex-side-effects.html

It lists nasal congestion and a lot of other possible side effects.
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Old 01-16-2010, 06:38 PM #12
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Thank you both for the resource information. Looks like it is time to cut back and see if it improves my sinus condition.

Cannot decide in this moment which I hate more, the restless leg syndrome or the stuffy, drippy sinuses. Both tend to prevent deep sleep. Been going on so long I feel lucky to sleep four hours at a time. Will let you know in future. Thanks again And Best Wishes TT
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Old 01-16-2010, 08:07 PM #13
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Quote:
Originally Posted by mrsD View Post
I cannot find much on the congestion issue on the net.
At Rxlist.com there is a chart showing at higher doses some congestion was reported. But it is not very much.

This drug is not available at Patientsville.com which is a site that commonly gives side effects and post marketing information on many drugs.

This site lists nasal congestion as a common side effect.
http://www.newsindexer.com/act/webpa...es/ue4948.html

I cannot find an explanation of how this works, and the chart at Rxlist.com does not give high incidence of it either.
I was taking 4.5 mg Mirapex at night; prescribed for FMS/CFS by my rheumatologist. Seemed to work for a while and gave me energy but the side effects of nasal congestion/flushing (much like when I have migraine) became troublesome, especially when I was having a dysautonomic 'flare'. I discontinued it due to the side effects. Mere
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Old 01-16-2010, 08:25 PM #14
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I do hope you get some relief.

As far as my diagnosis, they have not diagnosed me with scleroderma, yet, altho my labs and many symptoms indicate that possibility. I carry a Sjogren's diagnosis....with the PN. Most autoimmune disease melts across diagnostic criteria.

If you don't have bad RLS, Zofran (ondansetron) is worth a try. That has less issues with permanent movement disorder than the Reglan type drugs.
Cyclolops,

I have not been diagnosed with a 'frank' AI disease, although my rheumy says I have spondylarthropathy and treats me accordingly with Humira and prednisone. My labs show hugh immunoglobulins, ANA and high sed rate. Nothing really specific though...

I also have pesty high liver enzymes and fatty liver, although I am normal weight, am careful with Tylenol and do not drink alcohol...

Who knows... The AI diagnosis has changed a few times throughout the past 10 years, or so... Mere
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Old 01-16-2010, 08:29 PM #15
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Quote:
Originally Posted by tinglytoes View Post
Thank you both for the resource information. Looks like it is time to cut back and see if it improves my sinus condition.

Cannot decide in this moment which I hate more, the restless leg syndrome or the stuffy, drippy sinuses. Both tend to prevent deep sleep. Been going on so long I feel lucky to sleep four hours at a time. Will let you know in future. Thanks again And Best Wishes TT
How does Requip work? Or does it not? Mere.
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Old 01-16-2010, 08:30 PM #16
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That is a high dose of Mirapex....eesh. I have never gone over 0.675. No wonder you felt crummy. Mirapex is not a benign drug....some docs think if a little is good, more is better.

Nothing is worse than feeling crummy and having the libido that comes with that drug...(which is both awesome and troublesome).

Mirapex is female viagra, and it is funny it has not been marketed as such.
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Old 01-16-2010, 08:37 PM #17
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Cyclelops, Must be my Rheumy... he has a 'thing' about trying new drugs and treatments. Don't get me wrong, he is great and forefront in his field (and I have been seeing him for 12 years), but sometimes, I feel like a guinea pig. I think it may be good to be better informed?!! Thank you...

Are you serious about the libido thing??? Maybe I will go back on it. My libido..., well... not so great.

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Old 01-16-2010, 08:46 PM #18
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Yep....works quite well.

Quote:
Originally Posted by Mere View Post
Cyclelops, Must be my Rheumy... he has a 'thing' about trying new drugs and treatments. Don't get me wrong, he is great and forefront in his field (and I have been seeing him for 12 years), but sometimes, I feel like a guinea pig. I think it may be good to be better informed?!! Thank you...

Are you serious about the libido thing??? Maybe I will go back on it. My libido..., well... not so great.

Mere.
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Old 01-16-2010, 08:46 PM #19
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You don't need a huge dose either.

Now every one will have RLS.

There is a theory that dopamine agonists can treat fibro...I am not sure about that. Also a theory that dopamine can treat depression, more plausible. Small doses at bedtime work like a charm for RLS.

That said, it is not a benign drug.
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Old 01-16-2010, 08:53 PM #20
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There is something wrong with my dopamine receptors, always has been. I had RLS as a kid. Then there is the issue of what I consider fun, which has up til recently involved scaring the crap out of myself. No I have not jumped out of any planes, and now that I am older, I am confined to being very reasonable...like walking is a thrill.

Dopamine is interesting. Anyway, I have some physiological problem with not enough of it, and if I don't use Mirapex, I tic...hence the RLS. I only tic at nite. People with Tourette's tic during the day, not at night.

When I took zofran, I ticked for 8 hours straight and nothing relieved it, not even a boat load of dopamine....I ended up walking the country roads until it wore off.....hideous.

I have learned to be very careful what I put in my body.
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