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-   -   Diagnosed on 50th birthday- Newbie (https://www.neurotalk.org/peripheral-neuropathy/112435-diagnosed-50th-birthday-newbie.html)

kpRN 01-18-2010 12:41 PM

Quote:

Originally Posted by mrsD (Post 611816)
I think you have to have a spreadsheet program on your computer to download that site.
Hubby says OpenOffice.org has free.
He has it on his laptop. (he says it is a large program, takes a while to load).

I have never been able to get it either on this machine.


Well, I did copy to a word document but now just one page is too large, exceeds the file allowable size. I am not a quitter, I will find a way to get the info to you if I have to copy and paste sections.

kpRN 01-18-2010 02:19 PM

Quote:

Originally Posted by kpRN (Post 611831)
Well, I did copy to a word document but now just one page is too large, exceeds the file allowable size. I am not a quitter, I will find a way to get the info to you if I have to copy and paste sections.

I tried just copying a section of the page and it is still too large of a file. Since I am at work, looks like I will have to quit until I find another way. Have a good day.

mrsD 01-18-2010 04:24 PM

My husband says you can download OpenOffice.org for FREE.

Then you may be able to open that spreadsheet. ;)

Mere 01-18-2010 08:58 PM

Sarcoidosis
 
Quote:

Originally Posted by glenntaj (Post 611688)
...I'm specifically wondering about that elevated ACE level--neurosarcoidosis, though rare, can present as granulomas of the nerve tissue even without presence in the respiratory tract:...


Am I correct in thinking that the skin biopsy for PN includes testing for sarcoidosis? I am sure that it includes amyloidosis and inflammation.

Here is the link for the testing lab where my biopsy was sent:

http://www.therapath.com/Overview.php

Mere.

glenntaj 01-19-2010 07:05 AM

To my knowledge--
 
--they can look for the granulomas of sarcoid in the small-fiber nerves from a skin biopsy, and parts of the sample can be stained with Congo Red to look for signs of coiled amyloid proteins. But this probably has to be specifically requested by the doctor involved; I don't think it's automatic with the electron microscopy.

In my case, we went back to look for amyloid in the preserved samples from my first skin biopsy some months after it was first analyzed--negative, fortunately.

kpRN 01-19-2010 08:55 AM

Quote:

Originally Posted by mrsD (Post 611912)
My husband says you can download OpenOffice.org for FREE.

Then you may be able to open that spreadsheet. ;)

Mrs. D....I might be a little confused. I am able to open the spreadsheet from LizzyJane and have completed it with all of the info that is available to me at this time. However, the problem is trying to attach the spreadsheet to a post so that you can see the pages of the spreadsheet. It says that the spreadsheet is too large for what is allowed on this forum. When I get a little time, I will go through and send you what labs and other tests I have had done so you can look through it and advise me, if you have the time and feel up to doing it. I know you help a lot of people, God bless you for that.

kpRN 01-19-2010 08:58 AM

Quote:

Originally Posted by glenntaj (Post 612103)
--they can look for the granulomas of sarcoid in the small-fiber nerves from a skin biopsy, and parts of the sample can be stained with Congo Red to look for signs of coiled amyloid proteins. But this probably has to be specifically requested by the doctor involved; I don't think it's automatic with the electron microscopy.

In my case, we went back to look for amyloid in the preserved samples from my first skin biopsy some months after it was first analyzed--negative, fortunately.

The neuro that diagnosed me is pretty much done with me or so I get the feeling. He never gave me a diagnosis, I got it from the report once I requested a copy. I think I need to push on and find a doctor that specializes in this area. I just think if I went back to the neuro and asked him to do a bunch of tests, he would boot me out the door!!

Praise God that your samples were negative for sarcoidosis. That must have been a huge relief!!

kpRN 01-19-2010 09:01 AM

Quote:

Originally Posted by Mere (Post 612007)
Am I correct in thinking that the skin biopsy for PN includes testing for sarcoidosis? I am sure that it includes amyloidosis and inflammation.

Here is the link for the testing lab where my biopsy was sent:

http://www.therapath.com/Overview.php

Mere.

Mere....thanks for the link. I have never had a skin biopsy done and I don't think my current neuro would even order one. Will have to look for someone in my area that specializes in PN to get to the bottom of this. Have a good one!!

nide44 01-19-2010 09:25 AM

kpRN,
If you tell us your 'area', someone here
may be able to help you find a good neuro.

mrsD 01-19-2010 10:28 AM

Quote:

Originally Posted by kpRN (Post 612120)
Mrs. D....I might be a little confused. I am able to open the spreadsheet from LizzyJane and have completed it with all of the info that is available to me at this time. However, the problem is trying to attach the spreadsheet to a post so that you can see the pages of the spreadsheet. It says that the spreadsheet is too large for what is allowed on this forum. When I get a little time, I will go through and send you what labs and other tests I have had done so you can look through it and advise me, if you have the time and feel up to doing it. I know you help a lot of people, God bless you for that.

We do have size limits here. I misunderstood.
I am not an expert on lab results. My thing is DRUGS and vitamins etc. Glenn would know more about the testing than I do.;)


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