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cyclelops 01-29-2010 10:12 AM

You may also hear of small fibers referred to as thinly myelinated or unmyelinated or C fibers....one and the same.

EE03 01-29-2010 11:38 AM

Thanks, I understand that these are all peripheral, but I get the sense that there are inherent differences in the symptoms and pronosis, or maybe my fuzzy mind isn't grasping what I'm reading. I believe the neuro ruled out something by comparing the current results with those obtained 7 months ago. I guess I need to wait to see the report and discuss what further tests are being recommended.

cyclelops 01-29-2010 11:54 AM

With PN, or small fiber neuropathy, prognosis MAY depend on what is the underlying reason for the SFN to begin with. Often they try to find out if it is the result of some disease. If it is idiopathic, prognosis is more difficult to predict....on the other hand, all neuropathy is difficult to predict.

Once you get the test results you will have more direction.

Waiting is hard, and it is always as shock to get the diagnosis.

hcampbel1 01-31-2010 11:58 AM

small fiber neuropathy
 
Don't accept the etiology is idiopathic. There is a "root cause" for every medical problem, but too many neurologists just don't have the knowledege about small fiber neurology or the procedures available to find its cause. Don't let doctors give you excuse to give up because of their ignorance. There is an etiology, and once that's discovered, there's a cure. Mike.

Feel the Burn 02-01-2010 05:38 AM

Quote:

Originally Posted by hcampbel1 (Post 616301)
Don't accept the etiology is idiopathic. There is a "root cause" for every medical problem, but too many neurologists just don't have the knowledege about small fiber neurology or the procedures available to find its cause. Don't let doctors give you excuse to give up because of their ignorance. There is an etiology, and once that's discovered, there's a cure. Mike.

I agree Mike,, I am tired of suffering due to there ignorance,, I;m just tired of not sleeping,, waking up all hours of the nights,, sweating then freezing, Its like living in a body that just teases us with pokes and prods,,
Havning a family that doesnt understand it doesnt help either, sometimes I think it would be much easier to take teh bridge,, I;m just tired of teh balance problems,, shoes that feel like lead weights, and arms that just refuse to work right,, go to grab something and overshoot it,, fine motor skills about shot,, every night thinking,, maybe tomorrow it wil be just alittle bit better,, but it never is,, thats why i;m onhere at 5am,, stomach that doesnt work,, told them about that months ago,, but of course they refer you to another (specilist), I;m tired of specilist,, shoved between one and another, one gets tired of getting someone to take you there,,
Back to my family,, ther so used to seeing Dad and husband take care of things that they think as long as I;m walking and breathing,, then I must be ok,, I try to explain what its like,, but its not sinking in,,


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