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We don't know each other, but still you do know a lot about me, as we all in (almost) in the same boat of neuropathy. I would like to share with you some of my thoughts, even though it will be in my broken English....
I'm female, 53 years old and have idiopathic small fiber sensory neuropathy for 4.5 years. This (the SFN) knocked me down. It caused to a big change in my life. I stopped working (I worked in a lab. with too many chemicals and without the proper condition for this and I thought it might be toxic PN) and start to look for cure and relief to the PN. I think that a great part of my day is connected to my PN. I think, eat (vitamins), dress (comfortable cloth), walk (only with sport shoes) PN. (Beside some other things as going to some philosophy classes, do patchwork etc.) But - still have some fear from the future. I'm afraid of the pain, I'm afraid of the idea that the neuropathy can leads to mobility problems etc. And this fear stops me of doing other things. I don't know, most of the time, how to deal with this fear. How to live in the moment and not in the future. I see a psychologist, but he doesn't understand the neuropatic pains I have even though he tries to do his best... I see here, in the forum, so many of you that live "happily" with their PN. Please tell me how do you manage with your PN. How do you explain to your friends what you have. Many thanks for reading my post till here. Have a nice day and take care. Amit |
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