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-   -   small fibre peripheral neuropathy (https://www.neurotalk.org/peripheral-neuropathy/115169-fibre-peripheral-neuropathy.html)

nide44 02-24-2010 08:45 AM

Be aware that there are GTT and IGT tests for glucose and insulin.
A high 'normal' result could be a red flag for a pre-diabetic condition.
This is often missed or ignored, due to lack of up-to-date information.
(the docs sometimes don't have a clue) Depends on who interprets
the results, and their knowledge of PN and pre-diabetic relationship.

mrsD 02-24-2010 08:50 AM

Take that B12 on an empty stomach for best absorption.

lesley21 02-25-2010 11:10 PM

Hi thank you all for your help. I saw my doctor again today, my B12 levels were only 256
so I am glad I have gone on B12 supp. I am having a glucose tolerance test done tommorrow so when I get the results I will let you know the results. Thanks again I feel if I am getting somewhere now.

Lesley

Martin_12 02-28-2010 05:15 PM

Quote:

Originally Posted by lesley21 (Post 626283)
Hi thank you all for your help. I saw my doctor again today, my B12 levels were only 256
so I am glad I have gone on B12 supp. I am having a glucose tolerance test done tommorrow so when I get the results I will let you know the results. Thanks again I feel if I am getting somewhere now.

Lesley

A minor point: In the USA B12 is measured in picograms/mL (pg/mL)while in Australia the units are picomoles/L (pmol/L). According to the AFP paper by Oh you need to multiply Australian results by 4/3 or 1.3 to get USA values. So your 256 pmol/L is equivalent to approx 340 pg/mL in the USA. Wikipedia gives a similar conversion factor. Your value is still low.

Make sure you are taking at least 1000 micrograms of methylcobalamin per day on an empty stomach as Mrs D recommends. I take 5000 micrograms/day. There are no known adverse effects of high doses.

Martin

mrsD 02-28-2010 05:36 PM

Thank you Martin!

Could you please post this conversion in a post on my B12 thread? It would be very useful for the posters here from Australia and NZ, and other countries as well.

http://neurotalk.psychcentral.com/thread85103.html

plgerrard 03-01-2010 06:46 AM

RlS?
 
Leslie, you made a statement that has me wondering if you might also be dealing with RLS (Restless Leg Syndrome):

Quote:

but am still having a lot of leg pain and I am having trouble sleeping at night
I have had occasional bouts of RLS for over 20 years, but with the onset of SFN, I started having nightly bouts of it. I'm not sure, but think that RLS is common with SFN.

You might talk with your doctor about treating you for RLS and see if that helps with the leg pain at night. It certainly helped me.

lesley21 03-01-2010 11:26 PM

Thank you plgerrad, my mother suffers from Restless Leg Syndrome her symtoms sound different to mine, my legs just ache all the time and more at night, I don't have the feeling to move them anymore I did when I was on different meds, (Dopth75 and Tramadol) I was also having jerking movements then, I get these now and then now but not all the time. But I will talk to my doctor about RLS and see what he says.

thank you for your help

Lesley

lesley21 03-02-2010 02:58 AM

I am replying regarding my glucose tolerance test, just got my results back and I am not diabetic. I check the results on the internet to make sure, all is good. I have not been checked for vit D yet, my doctor is going to a meeting on Vit D on Friday, he said he will test me after this, so he knows more.

Thanks again everyone

Lesley:hug:

Feel the Burn 03-02-2010 12:33 PM

Quote:

Originally Posted by lesley21 (Post 627827)
I am replying regarding my glucose tolerance test, just got my results back and I am not diabetic. I check the results on the internet to make sure, all is good. I have not been checked for vit D yet, my doctor is going to a meeting on Vit D on Friday, he said he will test me after this, so he knows more.

Thanks again everyone

Lesley:hug:

Dont know why he just didnt write teh scrip for you to get tested,, its only one tube of blood,, why do they love to keep messing around when were the ones in pain, at least he would have ther results when he comes back from the meting

myeamans 03-02-2010 04:46 PM

Horrible burning feet
 
Hi. I saw your post and I was wondering if you could offer me any advice. I have horrible burning foot pain. I went to my doctor got diabetes test, lupus, lyme disease, vitamin definicency, etc. went to a gastrointestinal doctor and had some kind of sugar test, and some scope thing to see if I had celiacs, then I went to a neurologist and had nerve conduction and EMG plus a MRI of my back. Tomorrow I see a vascular surgeon to see if he can offer some help. Some people say it's a neuropathy, some people say maybe its circulation issues. I changed socks, shoes, started vitamin B shots, lots of things and I get no relief. The neurologist says that they think its small fiber neuropathy and nothing came up on the nerve conduction or some other test they did. They will do a skin biopsy. I also get really dry mouth, lightheaded a lot, I bruise easily and I tend to get out of breath easily even though I don't smoke and I'm a runner. (These things may be unrelated, who knows) Anyway, I need some relief, I can't stand it anymore. Do you have any ideas on what I can do, or who I can talk to? By the way, I tried Neurontin and it's horrible side effects, I'm on cymbalta now but only for about a month so I don't know if that's been enough time to start working yet.

Thanks so much in advance for any advice!


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