NeuroTalk Support Groups

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-   Peripheral Neuropathy (https://www.neurotalk.org/peripheral-neuropathy/)
-   -   Just need to kvetch (https://www.neurotalk.org/peripheral-neuropathy/115296-kvetch.html)

dahlek 03-03-2010 08:36 PM

!
 
OK! YA HURT! ALL OVER OR EVEN IN PARTS TO THE POINT OF WANTING TO SCREAM! No? And maybe ask for amputation it hurts sooo bad. Well, yeah, it's best to simply say" w/ moisture forming in yer eye corners? Yeah It hurts! I'm so tired of it hurting, I can't even cry! TAKES TOO MUCH EFFORT rite now!!!!!!!!!!!!!! Doing this in a stoic and simple statement makes much more of an impression that one going OW! OW! OW! Get it?
BEING ARTICULATE? Means, not like " I read on 'neurotalk' that....." More like I've learned from 'various web sites' and particularly NIH or other truly credible orgs that This mite be...based on what I've read...BECAUSE of A, B, And C! Tho tests have not been done about D, E, F or G! My timetables is This, My symtoms occured Then and my problems are Thus! While you want to scream about WHAT YA GONNA DO ABOUT IT?- Don't!!!! Simply ask what do I have or not, and what can be done? Tho it's hard to be 'unemotional' about your LIFE? THIS is one time you've almost GOT to be cool, calm and clinical about all tests done before and what you think mite help if being done.
Should you ask for references from any doc about other docs? Always ask for 3-5 names - which should be easy if you live in a metro area... Then, call yer other docs for 'names' And I bet you will find that tactfully, by inclusion or exclusion the nerds or jerks will not be on the list - especially if you've had a long relationship with them. Asking is CHEAP! It also makes your other docs feel 'useful'... And they can be really so! I'd started out w/a 1/2 dozen docs for simple 'maintence' stuff before I got my PN? I've now more than a 'baker's dozen'! By having new docs that your other docs KNOW? Cross communication can and does occur! Even during coffee breaks at area med meetings. It's amazing how 'we' can be discussed about nameless or not as problems or prospects for some docs?
Joan? As for the 6-month wait? Call and ask if you can be put on a 'cancellation' list? I've done that many times w/good results adding the caveat that I'd need 48 hours notice to reschedule other things if needed. It worked! I saw a key neuro in less than 10 days due to a cancellation! But, it depends on what you do, and how well you could 'drop things' to GO.
Again, doesn't hurt to ask?
Hugs :hug::hug::hug:'s and hope and soon! - j

PATINTEXAS 03-06-2010 11:20 PM

Get a new neuro!!!
 
If you have pn that has to do with your "nerves" not your "muscles" i would say you might want to look for a little older dr who has treated pn and understands it. Btw this is my first post on here. I am 63 yrs old and have had pn for over 11 yrs- i am on neurontin and norco.


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