I am going to start this thread, because the subject seems very
new and important.

Everyone is welcome to post on this thread any additional data, personal experiences and questions.

Here is one link I just found concerning diabetic neuropathy:

http://archinte.ama-assn.org/cgi/con...ract/168/7/771

This study was small, and unblinded, but is interesting nonetheless IMO.

On this link Mark describes how his improvement occurred after he starting fixing is low Vit D status:
http://neurotalk.psychcentral.com/sh...119#post293119
Search Mark._. to read his previous posts with his symptoms.

This is the link to D-Action...the group that made the medical video that is on YouTube currently:

http://www.grassrootshealth.net/
and here is their video which I link to often:

http://www.youtube.com/watch?v=TQ-qekFoi-o

This link also has alot of information on Vit D:
http://www.vitamindcouncil.org/

I've been watching the boards carefully for a long time here.
All of the boards are showing low D levels in patients who get tested. I think I have only seen a couple who were in the 40-50 ng/ range! Many have tested very low, almost in the single digits!

It is best to get a blood test to see where you really are. However, the recommendation now, is that 2000IU a day are safe for people who do not have testing. This dose may not raise you much, but there is nothing to say, it is dangerous.

The only exception to this remains those patients with sarcoidiosis. This inflammatory disease appears worse in patients who have higher D levels. This is not understood yet, and until that time that more data are available, those with sarcoid should consult their doctors before using Vit D supplements. Sarcoid is not a common disease.
This link discusses prevalence of Sarcoid and gives data for various ethnic groups and ages most commonly affected:
http://www.pulmonologychannel.com/sa...evalence.shtml

If one looks at the links above, one can see some of the new data coming out about Vit D status and chronic pain.
http://pain-topics.org/clinical_concepts/vitamind.php

http://newsblog.mayoclinic.org/2009/...c-pain-relief/

One myth still surrounds Vit D... and that it can be had from the diet. This is just not true. 8oz of milk typically have 100IU of D2 added!
If you live in colder climates, or do not go out into the sun without sunscreens, you cannot make your own Vit D adequately.

So glad you are starting this, and I look forward to prayerfully being a 'link' you put here for someone whose cure was Vitamin D!

My neurologist called today. Asked me how I was. I told him I'm not sure because he was calling me!
He told me that my bloodwork all came back within normal ranges except for the D (you and I knew that, but he had not yet called to discuss with me).

He said he has seen Vitamin D deficiency cause symptoms that mimick neuropathy. He wants me to just focus on getting these levels up and not do any more testing at this point. He is highly suspect that this is my problem.

As a refresher, I was dx with bilateral Tarsal Tunnel--confirmed through a nerve conducitivty test. Well, the test showed some issues anyways. To the podiatrist, it confirmed it was probably Tarsal Tunnel. I had one surgery to release the area and it did not 'take."

Neurologist said that bilateral entrapment in this way is rare. So not sure what that means for why I tested that way on the nerve conductivity test...

He told me to wait at least a month to expect any improvement in symptoms.

Thank you, thank you, Mrs. D. for starting this thread, and for posting all of the links for reference.

My Vit D was 26, and I was told it was well within normal ranges. I have it up to 45 now, but only because I decided to fix it.

Always request a copy of the results, and look them over yourself. My ferritin was only 22, and I was told everything is fine, 20 is anemia. I also have that up to 40 now. It had been at 22 for over a year when I mentioned the level, that's when I was told maybe ferritin IV's were needed.

You have to watch out for yourself. Many people have been told Vit B12 at 200 is fine too, and we all know that isn't true. Research, research, research.

I've been supplementing? But I know I'm still deficient tho docs haven't done THAT type of test in a while... Going to see one soon and ask [Hope, Hope] that it'll be ordered. I say this because of an injury and then another over the summer. I have literally become a cave-dweller and I do know that I can't wait for warmer weather to go out and soak up the natural stuff! Going that route certainly can't hurt supplements, which aren't really kicking in due to other issues as much as I'd like, nor expected due to those issues. Sigh?
Like the 'B's', the 'D's' haven't been given their due as they should as building blocks to life. A person can only do so much of 'mind over matter' to get well? Supplements and good 'groceries' are needed as well!
Thanks from the bottom of my heart -you've helped me soo much and I know you do a lot for others too! 's not enough of them? But the best I can do 'on-line'! - j

DarlinDeb...

My ferritin level was only 13!! Are you saying I'm anemic?
I see my lab says 12-156 is normal.
I know that may not mean anything.
I am trying to get to the root of my pain.
Would this level affect that at all?
I'm def. D deficient and working on that.

Mayo clinic link/video...

http://newsblog.mayoclinic.org/2009/...c-pain-relief/

interestingly, this guy says that patients with low D levels take twice as much pain meds...

Also told drs that if patients have unexplained pain, to check their D levels..

I hope that news gets around to more doctors and they do the check!

Thanks to pabb for finding this link....

Why the RX D2 50,000 IU doesn't seem to work:

http://www.thevitamindcure.com/blog/?tag=vitamin-d2

I came across the following link regarding vitamin D testing

It mentions 2 tests specifically there ( which I've never had in my life from what I can see form my reports ) are there any others we should be aware of that arent mentioned here ?

And are these the same as the tests everyone else had here ?

cheers

tepol

Yes, there are two tests.

The Marshall Protocol is still questionable and only followed closely by people with sarcoidosis. At this time Sarcoid is the only disease, that is watched by medical doctors doing Vit D supplements. The Marshall Protocol remains unproven.

Your testing should be for the 25-OH D which is the active form, D3.

I prefer this website for information:
http://www.grassrootshealth.net/

It is slightly more conservative than some of the others out there, and I retain a bit of that conservative attitude because of my own training.

Good day! I have been dealing with PN for over 10 yrs. I found a doctor that was willing to help me but then her retired and his partner REFUSES to discuss supplementation with me!

When I asked him to re-test me he actually put up his hand and *shushed* me! I was informed that because I lived in US that I got what I needed form my diet! I know this is NOT true.

I had my vitamin d level when I had it tested was 18! I have been working with a nutritionist who says that this level for a woman should be at least 40 if not more. my new dr will not refill my prescription for Vit D so my question is what form, D2 or D3 and how much? Thanks!