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Old 03-04-2011, 03:25 PM #1
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Lightbulb

I think you will need evaluation by a vascular specialist to show the decreased circulation in your legs. The neurologist is for nerves. Very specialized.

I would bypass that neuro and get another evaluation by a doctor
who can interpret the blood flow etc. If you do have PAD, you will need therapy from that specialist anyway.

I know it is a hassle, but that is how medicine is these days.
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Old 03-05-2011, 03:30 PM #2
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Quote:
Originally Posted by mrsD View Post
I think you will need evaluation by a vascular specialist to show the decreased circulation in your legs. The neurologist is for nerves. Very specialized.

I would bypass that neuro and get another evaluation by a doctor
who can interpret the blood flow etc. If you do have PAD, you will need therapy from that specialist anyway.

I know it is a hassle, but that is how medicine is these days.
Yeah, this is a hassle. Doc1 is a neurologist who sent me to doc2 who is a physical medicine & rehabilitation specialist. Doc1 insisted that doc2 could, for sure, help me with my PN pain (even I know that's BS). So you can see where this is going, and OK, I'm going through the PT just to humor these geniuses so they can't say that I'm being uncooperative.

I'm not sure what to do at this point...I got that ABI test, and it seemed normal, so is there another test I need, or are you saying I need a re-interpretation of that test?

Thanks again mrsD.
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Old 03-08-2011, 03:00 PM #3
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Yeah, this is a hassle. Doc1 is a neurologist who sent me to doc2 who is a physical medicine & rehabilitation specialist. Doc1 insisted that doc2 could, for sure, help me with my PN pain (even I know that's BS). So you can see where this is going, and OK, I'm going through the PT just to humor these geniuses so they can't say that I'm being uncooperative.

I'm not sure what to do at this point...I got that ABI test, and it seemed normal, so is there another test I need, or are you saying I need a re-interpretation of that test?

Thanks again mrsD.
Hey. Sorry, I've been away. Yes, you need to get that test either repeated or something else done. You need to see a vascular doctor and make him/her listen. After "talking" to you the last few weeks I really strongly believe your situation is like mine and the CCB's will help you.
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Old 03-05-2011, 05:55 PM #4
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Unhappy My feet are killing me

I have been casually diagnosed as having peripheral neuropathy in my feet due to a cervical injury. I have been on Neurontin and now am on Lyrica. Nothing works. I slept 3 hours last night and have small children. When I walk I feel like I walking on glass. Any advice??
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Old 03-05-2011, 08:50 PM #5
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I have been casually diagnosed as having peripheral neuropathy in my feet due to a cervical injury. I have been on Neurontin and now am on Lyrica. Nothing works. I slept 3 hours last night and have small children. When I walk I feel like I walking on glass. Any advice??
have you checked the floor?

just kidding, Ask your doc to put you on a cocktail. A mixture of pain relievers all working differently can help. eg lyrica/tramadol or lyrica/elavil
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Old 03-21-2011, 01:35 AM #6
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Default hot feet

Hi ive had hot hot feet for 12 years P/N / at night time I would soak my feet in cold water , maybe 2 or 3 times./ during the day a bit more . goodluck

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Hi. I ran across this website and I was wondering if anyone could offer me any advice. I have horrible burning foot pain. I went to my doctor got diabetes test, lupus, lyme disease, vitamin definicency, etc. went to a gastrointestinal doctor and had some kind of sugar test, and some scope thing to see if I had celiacs, then I went to a neurologist and had nerve conduction and EMG plus a MRI of my back. Tomorrow I see a vascular surgeon to see if he can offer some help. Some people say it's a neuropathy, some people say maybe its circulation issues. I changed socks, shoes, started vitamin B shots, lots of things and I get no relief. The neurologist says that they think its small fiber neuropathy and nothing came up on the nerve conduction or some other test they did. They will do a skin biopsy. I also get really dry mouth, lightheaded a lot, I bruise easily and I tend to get out of breath easily even though I don't smoke and I'm a runner. (These things may be unrelated, who knows) Anyway, I need some relief, I can't stand it anymore. Do you have any ideas on what I can do, or who I can talk to? By the way, I tried Neurontin and it's horrible side effects, I'm on cymbalta now but only for about a month so I don't know if that's been enough time to start working yet.

Thanks so much in advance for any advice!
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Old 03-21-2011, 06:21 PM #7
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Thanks everyone for your ideas.

Latest in the saga: doc1 office finally called back and said that they phoned in a script for Topamax. When I said "OK, so which ones am I going to stop taking?" she said "None, keep on taking the others too."

"You mean he wants me to take Amitriptyline, Gabapentin, Tegretol, and Topamax?"

"Yes, keep taking everything that you're already on."

I'm not doing that. I don't know much about this stuff, but that sounds insane to me. I will try the Topamax, but I didn't tell her that I already stopped taking the Tegretol (I did it gradually).

My brain is so buzzed from all these meds that I can't even think about the circulation issues right now, but I'll keep checking in as I (hopefully) get something under control here.

Thanks again.
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Old 03-22-2011, 08:10 AM #8
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Topamax shouldn't give you a brain 'buzz', but it did cause me to lose my short term memory for about 3 months (14 wks) until I stopped taking it. I titrated up at 25 mg/wk - up to 350mg/day, but never got to my doc's goal, of 400mg/day. I quit before then. It was a walking nightmare for me, but others have had successful results with it.
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Old 03-22-2011, 09:37 AM #9
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It's not just the Topamax, Bob--it's the whole cocktail, which was already causing impairment. I'm not noticing the short-term memory loss so much yet, but I just started with this new addition. He started me on 25 mg 2x/day.
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Old 03-24-2011, 08:26 AM #10
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It's not just the Topamax, Bob--it's the whole cocktail, which was already causing impairment. I'm not noticing the short-term memory loss so much yet, but I just started with this new addition. He started me on 25 mg 2x/day.
that was my starter dose, then 50mg 2x day then 75mg 2x day, etc.
The memory problem didn't arise until I hit about 275-300mgs/day. I was in a Shakespearian community theatre production and could not memorize the lines. I got fired from the show 2 weeks before opening .
When I titrated down to get off the drug, it was like coming out of a fog- a dense one. A great weight had been lifted from my psyche. (and I could remember to bring home the dog food )
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