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02-08-2011, 11:38 AM | #21 | ||
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Can you tell me exactly what is happening with you again? I know your feet burn and your legs ache when you exercise but do the feet turn colors? |
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02-08-2011, 03:18 PM | #22 | |||
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Thanks so much for your interest and support, myeamans!
What's happening with me? Yes. lots of burning and leg pain, although the latter doesn't sound to me exactly like what I've heard described for PAD. The muscles hurt when walking, especially climbing stairs, but the muscle pain stops immediately when I stop moving, not a lingering ache like PAD symptoms say. Burning is almost all the time. Color change: GP noticed it, I didn't, and said it was Raynaud's, but nobody's ever paid any attention to it until I mentioned it to my latest neuro. He didn't really look at it, but suggested a calcium channel blocker. It sounded like it invited more trouble than the condition causes, so I said "nope!" I will keep in mind what you said about your experiences. Thanks again!
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02-08-2011, 03:29 PM | #23 | ||
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"Thanks for this!" says: | mrsD (02-08-2011) |
02-08-2011, 11:09 PM | #24 | ||
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Magnate
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No wonder no one can diagnose us! WHEW!
meyanmans? I too get the burning and blue feet, PLUS swelling, It can and does get well? Totally ugly! As for exercises? GO Slowly...because of lots of other issues, I've NO foot tone at all! It's a 'pain' in more ways than one? Can't stand on toes to get to a top shelf anymore? Well, there's more, but you get the drift. Joan B? I too went the 'C' route, was totally lucky as the doc found a 'lump' I never did feel due to numb/dead fingertips! [FOUR MORE MONTHS & I'm at year FIVE!] and I will have won! Describing the pain is key? Something docs mite relate to? Such as having your feet 'blowtorched' or the like...dipped in hot french fry oil is my favorite. BLUNT is BEST! Sunburned feet these are NOT! Just keep hammering at finding YOUR right words, we all put a heap of them out here for you to pick up? And use the RIGHT ones for YOU! Never forget it IS difficult to get a diganosis, and harder yet, to get good treatments! Don't let your docs leave any stone unturned! Nudge, prod gently, ask SMARTER questions as you learn more? And never let them know you got it from the 'net' per-se? Why, some docs think this/we are junk. ALWAYS CITE The best resources up in the 'stickies', and no more than two at a visit. Nudge, prod and ASK! I truly hope you get somewhere! Crossing my 'fingers'! 's!!! - j |
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02-08-2011, 11:33 PM | #25 | |||
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Well myeamans, sounds like you do have a lot in your experiece that should make me sit up and take notice! Maybe I need to rethink the whole calcium channel blocker thing. It's just the way he was talking, it sounded like:
a. It would only address Raynaud's, which I thought at the time had nothing to do with how my feet & legs felt.Now that I've heard your story, I'm thinking it's worth a try. Heck, like you, I've tried so many things, and none of them, be they pharmceuticals or more natural things, have made anything even a little bit better. So maybe you are The One who has what I have and knows the piece(s) I need to find.
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02-09-2011, 12:32 AM | #26 | ||
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02-09-2011, 09:42 AM | #27 | ||
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I think there have to be thousands of people like us and we can help each other out. I love the internet and the fact that I can talk to other people going through the same stuff and possibly get some help from someone or give help to someone. Sharing advice and tips with each other about what works for us is probably going to get us a lot better than a doctor will. I don't know if our situations will turn out to be the same but ask me anything anytime and maybe I can help. I really hope you get some relief soon. |
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02-09-2011, 09:46 AM | #28 | ||
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It really sucks dealing with something like this especially at our age. I'm 35 and most doctors wouldn't even think of performing that on someone my age. My doctor even said that he thought it was a long shot but that he didn't have any other ideas to try so he wanted to try that. If your doctor isn't doing enough, demand to see someone else in the same office. That's a lot easier than starting all over with a new doctor in another office. By the way, those support stockings do not work. I've tried different socks, shoes, lotions, powders, etc. |
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02-09-2011, 09:53 AM | #29 | ||
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02-09-2011, 06:29 PM | #30 | |||
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I confess to not knowing much about this...I'm confused by what you said about the doctor discovering that you didn't have much blood going to your feet, myeamans. Isn't that what the ABI values are?
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