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03-02-2010, 09:25 PM | #1 | ||
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Junior Member
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Hi. I ran across this website and I was wondering if anyone could offer me any advice. I have horrible burning foot pain. I went to my doctor got diabetes test, lupus, lyme disease, vitamin definicency, etc. went to a gastrointestinal doctor and had some kind of sugar test, and some scope thing to see if I had celiacs, then I went to a neurologist and had nerve conduction and EMG plus a MRI of my back. Tomorrow I see a vascular surgeon to see if he can offer some help. Some people say it's a neuropathy, some people say maybe its circulation issues. I changed socks, shoes, started vitamin B shots, lots of things and I get no relief. The neurologist says that they think its small fiber neuropathy and nothing came up on the nerve conduction or some other test they did. They will do a skin biopsy. I also get really dry mouth, lightheaded a lot, I bruise easily and I tend to get out of breath easily even though I don't smoke and I'm a runner. (These things may be unrelated, who knows) Anyway, I need some relief, I can't stand it anymore. Do you have any ideas on what I can do, or who I can talk to? By the way, I tried Neurontin and it's horrible side effects, I'm on cymbalta now but only for about a month so I don't know if that's been enough time to start working yet.
Thanks so much in advance for any advice! |
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03-03-2010, 02:10 AM | #2 | |||
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Member
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Hi myeamans, just replying to let you I have posted something on my original post (small fibre peripheral neuropathy). This is the best place to be and get information, I have learnt so much since I joined. Just by reading other peoples posts you also learn a lot and everyone is very helpfull and willing to give advice.
Best wishes Lesley |
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03-05-2010, 01:09 AM | #3 | |||
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Member
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Hi myeamans, I have something else at home that help with my burning feet, I have a pair of boots(slippers) that have herb packs that slip in a pouch in the sole of these boots, they can be put in the freezer or microwave. there are 12 different herbs in them not wheat. I brought them at a stall in my local shopping centre, but can be brought online, the website is
www.herbpack.com.au the slippers they show on their website are different to what I brought but they would do the same thing. they can be used for your feet or hands. hope this is of interest to you. take care Lesley |
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03-03-2010, 11:01 AM | #4 | ||
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Magnate
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Have you been tested for sjogren's? You said you started b shots. What was your level before? It can take time for nerves to heal and deficiencies to get better. What dose of Cymbalta are you on? I ask cause I was on too low of a dose to start off with. Did your doc give you as needed meds? Sometimes a combo of meds like Cymbalta are needed. I know at one time I could not tolerate neurontin but then tried it again a few years later but started very slow to lessen side effects. You stated you had an mri of the back but what about the brain? I am sorry I wish I had more answers for you but I would talk to your doc about as needed meds or adding/changing to the current
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03-06-2010, 03:25 AM | #5 | |||
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In Remembrance
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Wow. I understand your frustration. I personally don't know if my feet are burning up or freezing. The pain is bad and the sensation really interferes with life.
I don't know why I have this neuropathy. I did a healthy amount of drinking and I smoked for 40 years, so I got those potentials. I was dx'ed with MS 22 years ago and PN is a known result of that. I'll say one thing - this is one sucky thing to have to live with. You really need to want to live to live with this crap. It took me a few months to adapt. I wasn't suicidal - I just wanted to kill everyone around me without this problem - people just don't understand. I would suggest you just develop a serious attitude and ignore the stupid pain and climb mountains. It seems to be working for me. You're allowed to use all sorts of expletives while doing this... Now - to address the question at hand. Cymbalta - worked for a couple of days. Stopped taking it because I really would like my wife to stay with me (complete loss of the obvious). Lyrica - doesn't work. Gabagabagaba whatever doesn't work. There's been a few other drugs but I forget their names. This is something you can live a normal life with. Check out the NASA channel during the next shuttle mission (launches 4/5/10). You'll see me at the back left console (GC) occasionally. Nobody knows what I'm living with... Tom |
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"Thanks for this!" says: | dyctiostelium (04-28-2012) |
02-06-2011, 11:58 AM | #6 | ||
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Quote:
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06-17-2011, 08:17 PM | #7 | |||
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Member
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Quote:
Good luck, Marty
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Marty Idiopathic PN - diagnosed 1999 |
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"Thanks for this!" says: | zorrro13 (06-18-2011) |
06-18-2011, 08:55 AM | #8 | |||
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Member
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Quick update: had my first acupuncture session on Wednesday. I told him that all I want is pain relief and he said he can help. Well, of course he did. What I didn't expect is that he said I should notice some difference right away. So far, I haven't. If anything, the last few days have been pretty bad. I'm scheduled to see him again this coming week--I'm planning on giving him maybe 4-6 visits to see some results.
Scheduled to see the doc who said he has a new idea the middle of July.
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PPMS Rx 2013, symptoms since 2000 |
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06-19-2011, 07:33 AM | #9 | |||
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Senior Member
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Quote:
99% don't get any relief from this
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Bob B |
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06-21-2011, 07:18 PM | #10 | |||
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Member
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Even placebos have higher success rates than that.
Thanks, myeamans. I am going to collect all the stuff you've said here to take to my next doc visit in a few weeks.
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PPMS Rx 2013, symptoms since 2000 |
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"Thanks for this!" says: | myeamans (06-22-2011) |
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