advertisement
Reply
 
Thread Tools Display Modes
Old 03-03-2010, 03:58 PM #1
Mere's Avatar
Mere Mere is offline
Member
 
Join Date: Jul 2008
Location: A Beautiful Town in Maryland
Posts: 425
15 yr Member
Mere Mere is offline
Member
Mere's Avatar
 
Join Date: Jul 2008
Location: A Beautiful Town in Maryland
Posts: 425
15 yr Member
Thumbs down Mestinon

Has anyone here taken this medication? It is a drug used to treat Myesthenia Gravis but it was prescribed to help my autonomic neuropathy.

Well, the side effects are awful...

It is severely upsetting my already fragile GI tract. Stomach pain, cramps, diarrhea... you name it... I only took half the dosage (with food) as advised by the neuro. The thought of a higher dosage scares the hell out of me.

Mere
Mere is offline   Reply With QuoteReply With Quote

advertisement
Old 03-03-2010, 04:12 PM #2
mrsD's Avatar
mrsD mrsD is offline
Wisest Elder Ever
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
mrsD mrsD is offline
Wisest Elder Ever
mrsD's Avatar
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
Question

This drug is used for myasthenia gravis, and is a acetylcholine agonist. It will increase your GI actions. I warned you of this when you mentioned it before.

I don't understand why your doctor gave it you? With your history, etc. What is it supposed to accomplish for you?
__________________
All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei

************************************

.
Weezie looking at petunias 8.25.2017


****************************
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
mrsD is offline   Reply With QuoteReply With Quote
Old 03-03-2010, 04:56 PM #3
Mere's Avatar
Mere Mere is offline
Member
 
Join Date: Jul 2008
Location: A Beautiful Town in Maryland
Posts: 425
15 yr Member
Mere Mere is offline
Member
Mere's Avatar
 
Join Date: Jul 2008
Location: A Beautiful Town in Maryland
Posts: 425
15 yr Member
Default

He said it may squelch the symptoms of my autonomic dysfunction...
Mere is offline   Reply With QuoteReply With Quote
Old 03-03-2010, 05:29 PM #4
mrsD's Avatar
mrsD mrsD is offline
Wisest Elder Ever
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
mrsD mrsD is offline
Wisest Elder Ever
mrsD's Avatar
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
Lightbulb

Well... it is pretty strong, and your reaction is quite typical.

There is one poster on MG forum who uses the liquid form.
That way you can accomplish lower doses. 60mg/5ml.

1ml = 12mg

However, this drug just might not be for you. Report this to the doctor, he may agree.
__________________
All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei

************************************

.
Weezie looking at petunias 8.25.2017


****************************
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
mrsD is offline   Reply With QuoteReply With Quote
Old 03-03-2010, 07:09 PM #5
Mere's Avatar
Mere Mere is offline
Member
 
Join Date: Jul 2008
Location: A Beautiful Town in Maryland
Posts: 425
15 yr Member
Mere Mere is offline
Member
Mere's Avatar
 
Join Date: Jul 2008
Location: A Beautiful Town in Maryland
Posts: 425
15 yr Member
Default

Thanks MrsD... I think I agree...I remember you mentioning that it causes gastric upset. I had no idea it would be this bad - with one dose of 40 mg. I can be a bit of a lightweight with meds.

At least I gave it a try...

Mere
Mere is offline   Reply With QuoteReply With Quote
Old 03-03-2010, 07:13 PM #6
cyclelops's Avatar
cyclelops cyclelops is offline
Magnate
 
Join Date: May 2007
Posts: 2,049
15 yr Member
cyclelops cyclelops is offline
Magnate
cyclelops's Avatar
 
Join Date: May 2007
Posts: 2,049
15 yr Member
Default

Mestinon was the first drug I was ever on for PN. It was before I had my skin biopsy. It didn't do much but make me kinda sick and weird feeling....then again, every one is different. After I got my skin biopsy back, they put me on IVIG....(which I had my first reaction to this time--I'm fine, but I had some odd things.)

Anyway, one can always try the Mestinon...
__________________
Some days are not so good
.

.


Others not so bad:
.
cyclelops is offline   Reply With QuoteReply With Quote
Old 03-03-2010, 09:51 PM #7
Mere's Avatar
Mere Mere is offline
Member
 
Join Date: Jul 2008
Location: A Beautiful Town in Maryland
Posts: 425
15 yr Member
Mere Mere is offline
Member
Mere's Avatar
 
Join Date: Jul 2008
Location: A Beautiful Town in Maryland
Posts: 425
15 yr Member
Default

Quote:
Originally Posted by cyclelops View Post
Mestinon was the first drug I was ever on for PN. It was before I had my skin biopsy. It didn't do much but make me kinda sick and weird feeling....then again, every one is different. After I got my skin biopsy back, they put me on IVIG....(which I had my first reaction to this time--I'm fine, but I had some odd things.)

Anyway, one can always try the Mestinon...
Yes, Cyclelops, he wanted me to try it before the IVIG. I will definitely pass on this one...

Are you okay? I missed your sense of humor...

Mere
Mere is offline   Reply With QuoteReply With Quote
Old 03-03-2010, 10:40 PM #8
george75 george75 is offline
Junior Member
 
Join Date: Jul 2007
Location: orlando,fl.
Posts: 70
15 yr Member
george75 george75 is offline
Junior Member
 
Join Date: Jul 2007
Location: orlando,fl.
Posts: 70
15 yr Member
Default never take any medication

until you have checked all the side effects on your computer. The doctors can not remember the side effects of all the drugs they prescribe.

Last month i had an operation and a script for antibodies. I checked it on my computer and it said do not take if you are taking Morphine. I have been on Morphine for 5 years and it was on my chart. It said it could cause severe abdominal pain or possibls DEATH.

10 years ago i took ZOCOR for cholestrol and i got Neuropathy.It even said it on the box. Doctor did not tell me. Since then i do my own checking.


George
george75 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Mere (03-04-2010)
Old 03-04-2010, 09:45 AM #9
cyclelops's Avatar
cyclelops cyclelops is offline
Magnate
 
Join Date: May 2007
Posts: 2,049
15 yr Member
cyclelops cyclelops is offline
Magnate
cyclelops's Avatar
 
Join Date: May 2007
Posts: 2,049
15 yr Member
Default

Mere, I am OK, I guess. I have a newborn here in the house, (he was quiet for a week, no more!) and my kitchen is torn up, and my contractor broke his ankle....life gets complex at times! I have been attempting to make soap....and ordering seeds for the garden. I just have my humor in a 'dust proof' box. The real fun this week came during kitchen demo when hubby nicked a pipe! No water for a day, and of course, the Old Faithful in the kitchen was hydrating to say the least. It was like a comedy scene from a movie. Hubby was at the helm of the Sawzall, not me...I knew better.

Alas. Why I do these things is beyond me.
__________________
Some days are not so good
.

.


Others not so bad:
.
cyclelops is offline   Reply With QuoteReply With Quote
Old 03-04-2010, 01:26 PM #10
Mere's Avatar
Mere Mere is offline
Member
 
Join Date: Jul 2008
Location: A Beautiful Town in Maryland
Posts: 425
15 yr Member
Mere Mere is offline
Member
Mere's Avatar
 
Join Date: Jul 2008
Location: A Beautiful Town in Maryland
Posts: 425
15 yr Member
Default

Was it like the episode of three stooges when they are plumbers? Sorry, not funny, I am sure. What a mess... Hope things get cleared-up soon.

Happy soap making... sounds fun!

Mere
Mere is offline   Reply With QuoteReply With Quote
Reply

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
How do you take your mestinon? whirlwind123 Myasthenia Gravis 18 08-19-2012 11:44 AM
Mestinon Maxwell'sMom Myasthenia Gravis 53 11-14-2009 09:30 PM
Thank You Everyone and Mestinon! Joanmarie63 Myasthenia Gravis 18 10-07-2009 04:13 PM
Mestinon leaningin Myasthenia Gravis 2 08-29-2009 09:23 PM
Mestinon BARBARA356 Myasthenia Gravis 5 08-26-2009 09:41 AM


All times are GMT -5. The time now is 05:02 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.