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Old 03-09-2010, 02:20 AM #1
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Default Seeing a lot of floaters, and taste and smell loss.

I am a 20 year old male and have been diagnosed with a motor/sensory peripheral neuropathy due to autoimmune thyroid disease hashimoto's thyroiditis. I had many many symptoms before but now they all seem much better but i still have these few symptoms which include constatnly seeing floaters during the day, spontaneous shallow breathing at times, taste and smell loss and no appetite during the day. I also have this feeling of pressure between my eyes possibly due to the nerve damage in my nose causing the smell and taste disturbance. Fatigue is another one and muscle weakness and tingling in my forearms/arms.

I wish these remaining symptoms would just heal so i can fully recover and get back to my life.

I am wondering if Benfothiamine could possibly work to heal the rest of my neuropathy. Does anyone know if people have gotten cures with this fat soluble form of Vitamin B1?

Or are their any other alternative treatments that i could try?

I am also curious has anyone else had these appetite and smell/taste disturbances because it really sucks when you cannot smell and taste things that you used to be able to and you feel their is not even a point in cooking anymore due to it.

I have tried and am already using Methylcobalamin, Acetyl L Carnitine, Omega 3's, B1, B2 and other supplements on and off.
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Old 03-09-2010, 03:54 AM #2
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Quote:
Originally Posted by MetalMX View Post
I am a 20 year old male and have been diagnosed with a motor/sensory peripheral neuropathy due to autoimmune thyroid disease hashimoto's thyroiditis. I had many many symptoms before but now they all seem much better but i still have these few symptoms which include constatnly seeing floaters during the day, spontaneous shallow breathing at times, taste and smell loss and no appetite during the day. I also have this feeling of pressure between my eyes possibly due to the nerve damage in my nose causing the smell and taste disturbance. Fatigue is another one and muscle weakness and tingling in my forearms/arms.

I wish these remaining symptoms would just heal so i can fully recover and get back to my life.

I am wondering if Benfothiamine could possibly work to heal the rest of my neuropathy. Does anyone know if people have gotten cures with this fat soluble form of Vitamin B1?

Or are their any other alternative treatments that i could try?

I am also curious has anyone else had these appetite and smell/taste disturbances because it really sucks when you cannot smell and taste things that you used to be able to and you feel their is not even a point in cooking anymore due to it.

I have tried and am already using Methylcobalamin, Acetyl L Carnitine, Omega 3's, B1, B2 and other supplements on and off.
This can be quite rare in young people. Aging is often a common cause. But IMO loss of smell is either a serious sign of a brain problem (tumor) or caused by some drug used.
Application of Zicam products to the nasal membranes has resulted in loss of smell.
http://www.fda.gov/ICECI/Enforcement.../ucm166909.htm

Also the antibiotic Biaxin (clarithromycin) has been implicated in some cases of loss of smell. Huffing or snorting drugs can damage the olfactory bulbs also.

Here is a medical paper that discusses this problem:
http://www.aafp.org/afp/20000115/427.html

Notice that hypothyroidism can be a cause.

Benfotiamine is worth trying. It does not have serious side effects. I can't say that it will help however.
Have you been evaluated by a physician for this? I think going to a specialist is in order for you.
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Old 03-09-2010, 04:49 AM #3
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Quote:
Originally Posted by mrsD View Post
This can be quite rare in young people. Aging is often a common cause. But IMO loss of smell is either a serious sign of a brain problem (tumor) or caused by some drug used.
Application of Zicam products to the nasal membranes has resulted in loss of smell.
http://www.fda.gov/ICECI/Enforcement.../ucm166909.htm

Also the antibiotic Biaxin (clarithromycin) has been implicated in some cases of loss of smell. Huffing or snorting drugs can damage the olfactory bulbs also.

Here is a medical paper that discusses this problem:
http://www.aafp.org/afp/20000115/427.html

Notice that hypothyroidism can be a cause.

Benfotiamine is worth trying. It does not have serious side effects. I can't say that it will help however.
Have you been evaluated by a physician for this? I think going to a specialist is in order for you.

I'll have to go and see my neurologist again yes.

I was diagnosed with PN a few months ago and did one Nerve Conduction study and EMG which confirmed it. Did an CT Scan of the brain 6 months back before i got on thyroid medications which showed some posterior cortical atrophy. After i began thyroid treatment my neurologist did a Brain and Spinal MRI which showed nothing abnormal (I still have the results here) and the posterior cortical atrophy wasn't even their anymore so it healed due to me starting on thyroid replacement.

I believe this is just remaining nerve damage which hasn't yet healed.

Also I don't do drugs or use any anti-biotics.

I'll see how i go with Benfothiamine.
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Old 03-09-2010, 07:53 AM #4
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Well I too have floaters and pressure pain in the eyes and head. I also had mris and scans of my eyes. Have you been to an eye specialist? Are you on any meds like neurontin etc? Though I am not in a good place right now with this med I have gotten some relief. I am sorry I wish I had more help and answers. Hang in there
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Old 03-09-2010, 09:18 AM #5
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Floaters can be normal and often come in spurts. It seems the inside of the eye can release cells as they are replaced.

Extremely nearsighted people tend to have more of them, as the eyeball is not round for them, but elongated. This puts more tension stress on the cells inside the eye. I have been warned by my eye doctor that any huge change in floaters should be checked by him, because they can herald a retinal detachment in some people, esp nearsighted ones as they age. So in seniors this is important.

When I was hypothyroid I had some hearing loss, which did get better. But my left ear is still less acute than my right.

I have very acute smell detection tho, always have. Never was affected by my hypothyroid, that I had for years. My husband still calls me the super sniffer! Women tend to have this tendency over males I have read.
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