NeuroTalk Support Groups - We went to the PN Support Group last Thursday

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- - We went to the PN Support Group last Thursday (https://www.neurotalk.org/peripheral-neuropathy/117283-pn-support-thursday.html)

psst....they speak Portuguese in Brazil not Spanish.

Quote:

Originally Posted by echoes long ago (Post 635658)

psst....they speak Portuguese in Brazil not Spanish.

Yeah, I know lol
But she ended the paragraph saying "Besitos" and that means Kisses, right? in Spanish? right?

or did I get this wrong??

lol lol lol

Bom dia Mel, good morning!!!

Im calling you Mel which means "honey" in portuguese, sweet like you.
So Mel, you are right "besitos" means kisses in spanish, i wrote because i knew you would understand. big spanish speakers community over there!
Cantonese, arabic wow!!! Congratulations! its really good for our brains and exciting learn a new language. and its so beautiful when we find out similarities between languages, telling us that we are one, in the end of day we all came from same roots...:grouphug: Im trying to learn greek :confused: and every lesson is a laugh.
Laughing its such a good medicine! we should do it more, like when we all used to do as a baby, spontenously healthy laughing, free of stress :D
I would love to share an article of Jess Weiner "What makes you beautiful?" laughing is on the list!!! Such a simple recipe: case of giggles + honesty and snuggles. You can find the fully article on her website.

Mel your daily "silly" laughing with Allan make you a beautiful couple! and its so nice to read your posts and see the support you provide to him. Caring for our loved ones is a task that is priceless. My partner is kidney transplanted, and we are caring each other for almost 3 years now. Even having different health issues and different symptoms theres a point where we find common symptoms ... like the feeling down you mention. so at times like these we laugh silly! and we become healthier, happier and according to Jess: beautiful, i trully agree with her. a daily spa for the heart, soul and body.

Im writing a topic later, im putting the idea together to be clear and get the group to participate too. I joined Neurotalk already, but in order to change the visitor status i have to post more. here i am:D

Lemonade its perfect when we are thirsty. Im drinking "spring" at moment, feeling much better. The winter makes my neuropathy so bad. the grey sky so depressing. When the weather its cold my leg feels like a stone. thanks God that life is cyclical, and we can notice differences outside there and spring are here to make us colourful and happier inside.

have a wonderful day Mel and everyone who is reading this post
beijos, besitos, bisous, filakia :hug:
Carla

--Spanish and Portuguese are the two most closely-related Romance languages; I think we can excuse her.

Now if she starts speaking Roumanian . . .:)

Quote:

Originally Posted by glenntaj (Post 635755)

--Spanish and Portuguese are the two most closely-related Romance languages; I think we can excuse her.

Now if she starts speaking Roumanian . . .:)

Hello Glen,
hope you are well
no Romanian isnt on my list yet hahaha. i was told that when we speak a second language its easier to learn a third. well i dont think is that easier after 30's and with all the neuropatic pain and symptoms but im insisting!
yeah portuguese is close to spanish, but i would not manage to live in Spain, i feel completely lost listen to them, the spanish from Cuba and some of south american countries is closer to brazilian portuguese. Spanish is beautiful and sounds so passionate.
ah! and also i need real concentration to understand portuguese from Portugal.
thank you for this conversation Glen and Mel, its not specificly about PN but you make me feel really comfortable here. thank you so much
take care
besitos

Quote:

Originally Posted by glenntaj (Post 635755)

--Spanish and Portuguese are the two most closely-related Romance languages; I think we can excuse her.

Now if she starts speaking Roumanian . . .:)

Someone might want to move this to social chat or something because I don't want to get in trouble talking off topic.

This is my final post off topic.

You mentioned GREEK (well, somebody mentioned GREEK!!)

The other restaurant I go to in the a.m. is a Greek restaurant. So if I go to Dunkin Donuts, I walk in saying "Salaam Aleeekum (pardon spelling, I'm just doing it phonetically here) (I think it means Peace be upon you), then I say "Yom Gamil (It's a nice day), then I say MedFudLuck, (which means Please), then I point to the veggie white thing, and I say "Shokran, and MaSalema, which is Bye, and everybody laughs and I have just ordered my breakfast in Arabic. If some of them speak french, then we all speak french.

But, when I go instead 7 blocks away to the Greek Restaurant, then I walk in shouting 'YASOOO", which means a hearty HELLOOOOO in Greek. And when I finish paying for the meal, I say "Ef Hatistoo (Thank you), and Dimitrius says "parakaloh", which I gather means You are Welcome.

I can navigate in a few languages. I did have a Romanian Boss once. He was gorgeous. Couldn't learn his language. Too busy looking at his face.

I mean, give me a break, I was 24 years old.

lol lol lol

No more silly off topic talk, I promise.

Melody

HI MELODY!!! Remember we met on Access a ride a few years ago. I live on the UES> I am back on the board now... How ya doing and Alan? I am so sorry that I missed the meeting this week. I will definitely be going on April 15th. I have been so ill with this drek. I am off now to Dr. Jonathan Charney who is great... I am surprised I never saw you at Whole Foods. Always there. Drop a note. Best, Robin

Quote:

There was a guy there who had this underlying auto-immune connective tissue disorder and he also had neuropathy. They did not know why he had neuropathy.

I asked him. How long do you have neuropathy? and he said "oh a few years now", I then said:"Were you at the site on 9/11?" and he said "oh, wow, sure, I was one of the first responders".

I then said "Quite some time ago, my husband had gone to a physiatrist, and the first question she asked Alan was "Were you at the World Trade Center on 9/11?" and we said "no why?" and she said:

"You have no idea how many people who responded, are now coming down with Neuropathy"

So it gave this guy something to look into.

It's a very diverse group. And we learn new stuff every month. And one person's experience with Lyrica and Neurontin is completely different than another person's experience. Some take opiates. Some take NOTHING. Some of them are on IVIG.

And at next month's meeting a representative from an IVIG company is going to speak. And in the following months we are going to have two doctors come and speak.

So all in all, it's a great support group and we have various people come and make presentations.

Of course we all want to find a cure for neuropathy, but until that day arrives, people are trying to learn to cope with the pain and numbness from their own form of neuropathy.

Some are cranky, some are in pain, some are numb. All have their stories.

Some people use walkers, some use canes, but most just walk in on their own.

And next month I will be bringing my balance/wobble board and giving a demonstration on improving one's balance.

Now that shall be a hoot.

So, if any of you can come, do try and make it. You'll see me and Alan and you 'll taste my muffins.

And one guy even brought a cake that he made. The law firm that gives us the big meeting room always supplies coffee, tea, fixings, etc. and cookies.

It's a very nice law firm that donates this room once a month to our group.

Take care,

Melody

Quote:

Originally Posted by NYC numb gal (Post 636706)

Hi. Yeah, I remember you. Glad you'll be coming to the meeting on April 15th. The reason you won't see me at Whole Food is because I don't live near there. I happened to be there because Alan had a doctor appointment. I wish there was a Whole Food near me, but I grow my own stuff, so I'm good.

Anyway, good to hear from you. See you in April

melody