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Old 11-08-2011, 07:24 AM #1
howyeall howyeall is offline
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Originally Posted by Aussie99 View Post
I empathise with you. I was also very young when I got neuropathy. I was only 32. I had a severe case which also effected my autonomic system to some extent.

One thing that someone said a long time ago that is so true with dealing with neuropathy is that nerves heal so slowly, that neuropathy improvement is measured on a 6 month basis. While your nerves heal they will send screwed up signals that may make you think it's getting worse.
If you want my personal opinion, I agree with Glenntaj, your nerves are starved for nutrients and oxygen. Your smoking can only make things worse as you deliver over 1000 harmful chemicals straight into your blood stream.
By stopping smoking and taking the right supplements and nutrients to assist with healing you will be helping your nerves to heal.

The good news is that nerves can heal but they require alot of TLC.

Hi Aussie,

hope you are keeping well. it seems my symptoms may have been very similar to yours. i am only 26 but have peripheal neuropathy and autonomic neuropathy probably as a result of alcohol i gave up alcohol straight away once i noticed but it has gradually got worse. legs and hands buzzing and starting to become painful, walking on golfballs, irregular heartbeat, heartburn, abnormal sweating, pale face, sleep disturbance, large pupils, constipation, early signs of erectile dysfunction and dizziness, slight headaches, oversensitivity to noise. this has me extremely worried about my future and its very hard not to let negative thoughts creep in .

just wondering were your symptoms similar to mine? how well you recovered? and how long did it take? can u feel nerve regeneration? can u recover from autonomic neuropathy? do u have any advice? sorry for all the questions but they are constantly playing on my mind. i need someone who doesn't think i am crazy, please help

thanks very much you sound like a kind caring person.

best wishes my friend
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Old 11-13-2011, 06:56 PM #2
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Originally Posted by howyeall View Post
Hi Aussie,

hope you are keeping well. it seems my symptoms may have been very similar to yours. i am only 26 but have peripheal neuropathy and autonomic neuropathy probably as a result of alcohol i gave up alcohol straight away once i noticed but it has gradually got worse. legs and hands buzzing and starting to become painful, walking on golfballs, irregular heartbeat, heartburn, abnormal sweating, pale face, sleep disturbance, large pupils, constipation, early signs of erectile dysfunction and dizziness, slight headaches, oversensitivity to noise. this has me extremely worried about my future and its very hard not to let negative thoughts creep in .

just wondering were your symptoms similar to mine? how well you recovered? and how long did it take? can u feel nerve regeneration? can u recover from autonomic neuropathy? do u have any advice? sorry for all the questions but they are constantly playing on my mind. i need someone who doesn't think i am crazy, please help

thanks very much you sound like a kind caring person.

best wishes my friend
All I can say is do not drink again. Also don't take mega doses of any vitamins as in my opinion that can be toxic as well. Stay fit, well nourished and take a multivitamin. Get checked for any vitamin deficiencies and work with your doctor on getting them resolved. Keep a health journal and write down your symptoms. Get support from family and a doctor. Keep regular doctor appointments. It seems to me that most cases of PN are treated the same, and by correcting the underlying illness (ie. alcohol) you have a good chance of stopping and reversing some of the damage. I also had autonomic symptoms for a long time and they eventually resolved well enough to not be a major issue for me. I had palpitations,anxiety and labile bloodpressure. I was miserable. It was really tough but I am still here. I was painfree for almost 3 years until I had a car accident and the injury to my spine set off a big flare of PN again. As for you, just get some support, praying also helped me and take it day by day. Nobody knows what the future holds for any of us. There is a very good chance that you will improve in time. feel free to PM me anytime. I am not on he board everyday though. I usually check in twice a week.
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Old 03-29-2010, 07:09 PM #3
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My doctor suggested vitamin b and thyamine supplements and flooding my system with glucose(lucosade) - this didnt work for me as I am not alcoholic(just the daughter of a recovering one) but he said it helped his alcoholic patients.
Someone also said smoking makes this worse - it stands to reaon that the smoke in your system will stop oxygen getting to the extremities so will starve the nerves.
Good luck in your sobriety
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Old 03-30-2010, 04:06 AM #4
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Another study on alcoholic PN
Quote:
Author: Tarakad S Ramachandran, MBBS, FRCP(C), FACP, Professor of Neurology, Clinical Professor of Medicine, Clinical Professor of Family Medicine, Clinical Professor of Neurosurgery, State University of New York Upstate Medical University; Chair, Department of Neurology, Crouse Irving Memorial Hospital
to read more please go to
http://emedicine.medscape.com/article/1174146-overview

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Copyright© ....No part of any material posted on Medscape may be copied, downloaded, stored in a retrieval system, or redistributed for any other purpose without the expressed written permission of Medscape .....

Last edited by Chemar; 03-30-2010 at 07:15 AM. Reason: Medscape Copyright
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Old 04-14-2010, 11:30 PM #5
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mizz mg I also have alcoholic neuropathy. Drank for 30 yrs. Have all the good things that go w/it. Cardiomyopathy, balance problems, neuropathy from the knee down on both legs, no ankle reflexes and the worst is alcoholic Hep C. Take 1600 mg neurotin and 250 mg effexor a day. Tried all of the vitiamins and thiamin, folic acid etc. This didn't help. But don't get discouraged some days are better than others. Neurologists have told me once the nerve damage is done it's irreversible unless caught very quickly. Hopefully, yours is caught in time. As for the health ins. try if possible to get on Medicaid thru your state it will cover all depending on income. Keep your head up and do your best. Hopefully, you will get relief.
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hello to all that may read this. i was told i have alcoholic neuropathy. iam only 30 years old. my symtoms are, walking on lumps, which makes it diffcult and uncomfortable for me to walk, stand,shower, anything that involves using my feet is uncomfortable. the doctor says i consumed so much alcohol and the lack of b-12 caused me to have alcoholic neuropathy. i'am married but seperated. i have two boys, they are 9 and 3. its sometimes diffcult for me take care of them, but by the grace of GOD, i have been making it. the doctor said for me to take b-12 vitamins. they help a little. my feet aren't as cold as they were. but i have to were certain types of shoes. i can't where heels, they have to be flat wide shoes. i sometimes get depressed because i'am so young and my children depend on me. if there is anyone out there that has what i have or have any type of neuropthy, plwase share some info with me, or perhaps your story. i feel so alone in this battle. i'am also new to this site.
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Old 04-15-2010, 09:25 AM #6
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mizzmg & cindy t,
I also have alcoholic neuopathy. I've had it for over 12 years, now.
I drank for many years and self-medicated on booze, before I was Dx'd w/PN.
Read the threads called 'sticky' at the top of the topics page.
It is invaluable info for 'newbies'.
Also, take vit B12 in the sub-lingual Methyl cobalamin form (not cyano cobalamin)
at least 1000-2000mcg/day.
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