[BEGLET]

I saw the amyloid spiecialist today (the ONLY one in So. Calif.) - he's done bloodwork and a special cardiac test to look for amyloid desposits in my heart..... his take is "although the heart test did not show deposits (I've developed cardio-myopathy in the last couple of years) he cannot rule it out. He said my symtoms are way too severe to be attributed to only PN, or Gastroparesis (autonomic PN) and next step to biopsy every organ they can to try to find if it is the culprit (amyloid can be very difficult to find)...

I'm hoping to be able to work with my GP at a local hospital who is an excellent doc and will work in conjection with him to try to rule this disease out - but again, he says based on symtoms alone hes sure its there some where..... So I march on -

Next week hope to finish dental work from the damage I did falling on my head out of the shower few months back - then work with GP to see what they can find........

Still in limbo