Thread Tools Display Modes
Prev Previous Post   Next Post Next
Old 03-26-2010, 08:05 AM #8
cyclelops's Avatar
cyclelops cyclelops is offline
Magnate
 
Join Date: May 2007
Posts: 2,049
15 yr Member
cyclelops cyclelops is offline
Magnate
cyclelops's Avatar
 
Join Date: May 2007
Posts: 2,049
15 yr Member
Default

AWWWWW, thank you guys. This is the best forum. It has the smartest, kindest, bestest people. Even with all our differences.

I will dig thru what I have on antibodies, but I know I need to ask the neuro which ones he all did. ENA is pretty basic. I had the gliadin one, and I was tested for Fabry's. I think it is worth redoing all the neuronal antibodies since they were done 6 years ago, and I was negative on ANA then....and my neuro system is what is being attacked the most. I could give any one with MS a run for their money symptom-wise and then some. Yes, LizaJane's sheets are great. I have them printed out.

I am not sure what survival advantage humor has. I am convinced that RLS was the 'gift' of shamans and night watchmen for the tribes...obviously those people were up looking at stars and watching out for safety. All I need is a rune drum and bells on my toes.

Having a robust immune system makes sense for some one of northern, and even far northern ancestry. I think I need to eat more fish and reindeer meat. Ok fish...no reindeer. I bought a cheap Swedish cookbook on an adventure to the Chicago IKEA with my daughter....eel meat, elk meat etc. recipes! Ewww. I guess it is good they made use of their environment. Thank goodness for the dessert section! Swedish pancakes, mmmm. I get my counter and sink installed today, and I actually want to cook....I hope I have the energy!

Well, thanks to all of you for support....and over the next few months, I will make a push on all the antibodies....I don't think I can swallow the unidentified antibody thing until I know what all they tested for...recently too.

A lot of treatment for these autoimmune things are similar.....I do plan on having them consider primary billiary cirrhosis, which was not considered....even if it is not a solitary disease with me, it seems worth considering given every medication I take that is metabolized by the liver, seems to not sit well with me. I am sure the IVIG is addressing things, but it either needs to be more frequent or have an add on drug....or maybe this is the best I can be right now. Who knows.

I did make two wonderful batches of soap yesterday, lavender organic shampoo bar and goat's milk-oatmeal complexion soap. (smells good enough to eat). The shampoo bars are wonderful and lather up with great bubbles! They really work! Now to fix up my basement work room, lol. Right now it is me, the spiders and spam....and last year's pickles.
__________________
Some days are not so good
.

.


Others not so bad:
.
cyclelops is offline   Reply With QuoteReply With Quote
 


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Graves Disease, connection with Celiacs disease and sore joints..Sorry so long... reneedrew New Member Introductions 4 06-16-2009 07:33 AM
Lou Gehrig's Disease In Humans Genetically Linked To Dog Disease http://www.scienceda BobbyB ALS News & Research 0 02-03-2009 09:13 AM
Highly Promising Dutch Research Into Alzheimer's Disease and Parkinson's Disease Stitcher Parkinson's Disease 0 12-17-2007 10:34 AM


All times are GMT -5. The time now is 05:16 PM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.