NeuroTalk Support Groups - pain and thoughts

NeuroTalk Support Groups (https://www.neurotalk.org/)

- Peripheral Neuropathy (https://www.neurotalk.org/peripheral-neuropathy/)

- - pain and thoughts (https://www.neurotalk.org/peripheral-neuropathy/117662-pain.html)

I ordered the book from amazon....

Hope I'll get it soon

I think it is good to vent

from time to time and if not here? so - where?

It is and I think wthout NeuroTalk where would we be and I thank everyone for being here.

Lesley

Quote:

Originally Posted by lesley21 (Post 637308)

I to had to give up a job I loved, I had worked at the same place for 10 years. I had something called a good work memory, I guess because it was my lively hood, if any one needed to know something they would come to me, I would remember something I had done when I first stated, we would do a job and I would say we have done this job before, everyone else would say we don't remember. I had spent the year before PN working out and losing over 25Kilos.
After giving up work I became depressed and bored, I really missed the work and my friends, so of course I over ate and because I could not exercise much I put most of it back on.
The cymbalta did work for me at the beginning but I feel that it is starting to lose it's effect now, I have spoken to my doctor about trying neurontin (it is cheaper here than lyrica) maybe taking cymbalta and neurontin together. If anyone has had success with these I would be interested to hear from you.
I guess we are all in the same boat, but it takes some time to realise that we are stuck with this and we have to make the most of it, do what we can when we can and trying to explain to someone something that no one has heard of is very difficult indeed, and when they say this hurts and that hurts just smile to yourself and say to yourself if you only knew.

Take care everyone,

Lesley:grouphug:

I am sorry that you too had to give up your job and do certainly understand about the depression and boredom...

I have fibromyalgia as well as neuropathy, so I was prescribed Cymbalta and Lyrica but my body could not tolerate either drug. It made me narcoleptic. Somnolence is one thing, but I was falling asleep on my feet and when driving. I have started taking Neurontin (again) more recently and do seem to tolerate it fine in smaller dosages...

I hope that you feel better :winky:

Mere

I have started to get things together now, I am going to aqua aerobics now which I am enjoying, watching what I am eating, I just need to get the meds right, I think I will try the Neurontin (when my doctor will let me), he keeps telling me to wait to see the affects of the cymbalta but I don't think it is going do any more. Tramadol had me dozing off at the wheel when I first started taken it but that was after a long day a work standing all day, my drive home took 30-45mins. I keep busy now catching up on crime dramas, I have a recorder so I tape a lot of shows, also I spend a lot of time doing things on the computer. I am also glad I found neuro talk for all the help and advice.

Hope you feel better too Mere

Lesley

I am one who gets some relief from neurontin. Won't say it totally takes the pain away, but it does help. I am supposed to be on 600 tid, but have trouble tolerating it, so I take 300 every 2 - 3 hours.

It DOES seem to screw with my memory somewhat.

I am so sorry Muffy1219... I make jewelry and have a beautiful studio stocked with thousands of dollars of components...

My hands are still capable most of the time, but I am so damn fatigued that I barely get in there anymore. Just do not feel all so awe-inspired to create these days. It tends to rest very heavy on the mind. I tell family and people I know, yep, working on a new line. What a bunch of crap.

I wish you the best and hope that things improve for you.

After ritedment - I went back to my old hobby of patchworks. I have a lot of materials at home. Pray that I'll be able to fullfill all my dreams and wishes.
Just today, my husband noticed that I have some muscle lost in my legs.

Can I do something to slow the process?

Scared.....

Quote:

Originally Posted by amit (Post 637686)

I am doing aqua aerobics, you will be surprised what you can do in the water which you can not do out of it, I have been jumping up and down in the pool, I can not even squat out of the pool, so I am hoping it will start to show signs of helping my PN.

Lesley