[cyclelops]

I am so freaking frustrated today....My ANA came back highly + again. 1:640 at this lab...it is a different lab. I usually run 1:1280 at the usual lab. I anticipate the next one will be that. ENA came back negative. Grrrrr. I am some cr@p unusual antibody that is not showing up in routine tests. They are sending me numbers so I can draw my own conclusions. If the rnp come back anywhere near the cutoff...well then I proclaim this MCTD, as one of my docs says. RNP is running close to cut off, as of last ENA.... We will see.

I dont know whether to push for all the odd antibodies, or if that makes a difference in treatment or not. I wonder if I need a 'bigger gun' added to the IVIG.

IVIG it doesn't seem to be helping enough, as far as I know, and now I have developed just about ALL the autoimmune symptoms, including rash. Fatigue is awful. My C4 is still low. I have a slightly elevated serum billi which makes me nervous, since primary billiary cirrhosis is an autoimmune disease with sicca, as well.

My neuropathy is still cruising on full speed.

It is bad too know too much. I don't even WANT another ANA or ENA....ANA is high, period. That is ALL we know, and it is too high to be a normal variant.

I am going to go pout and make some soap. This cr@p condition is defying any label other than autoimmune.