I doubt that I can offer anything you haven't already considered, but know how difficult it is to always feel like you've been run over by a truck.

There have even been times I've thought I would have to get better to die .

Have you ever looked at LabTestsOnline for their interpretations of lab results. If you haven't, here is the link for the ANA test:

http://www.labtestsonline.org/unders...na/glance.html

I'm afraid I don't know all your history, but have seen your concern about Sjogren's and Scleroderma. Have you looked at your symptoms compared to those of Lupus? LTO suggests that may be one of the conditions associated with high titres and positive SSA/B, and recommends a couple of other tests that may confirm that.