Thanks Echoes:

The cost IS WAY TOO MUCH FOR US.
I did tell Alan what you all said. He said "Tell them thank you very much for their input, I knew it was too good to be true".

We are seeing his podiatrist next week for his regular foot exam.

Oh, he got his blood work back.

He has high triglycerides. Now how can someone who is a vegan have high anything. I feed him those Gardein meals and once in a while some pasta. While I eat my sprouts daily he does not. He DOES INDULGE IN COOKIES, CAKES and other stuff with sugar.

I have told him "too many carbs". Wait until Dr. Fred gets a hold of him.
Oh, forgot to tell you, Alan is going for a VNG at his primary care guy's office on Friday. It's a new kind of test that you put on goggles, and they put some kind of headgear and show you images. It is supposed to test his reactions and his balance. It's a long test, but it's supposed to be state of the art.

Alan feels that his balance is a bit off since he went off of IVIG, so his doctor ordered this test for him.

I'll update you all after it's done.

Take care and thanks much

Melody

VNG seems to test the inner ear and to see if that is affecting balance.

A lot of people with PN have bad balance because we cannot feel our feet and have no feedback as to where our feet are and thus use our eyes to balance. If i close my eyes i start to sway.

The explanation of triglycerides is in the video I recently put up in the Diabetes forum.

Sugar (which contains fructose), cannot be metabolized by the liver properly.

High triglycerides are a major factor in heart disease. They also thicken the blood and make it more viscous and hence the circulation to the feet becomes impaired.

Look at this: He cures lung cancer too! cough cough

http://www.davidbphillips.com/

I told you that sometimes it helps! Now put him on speed dial!

Yeah !
He's a regular Ron Popeil of the high end market.
(Didn't he try to re-invent another artificial heart - or some organ,?)
His unit has been around for years. Most users say temporary relief for an hour or so, some for a day or 2 - but a cure? I don't think so!
This is a slick, fast-talking, snake-oil outfit that is getting more high tech looking every year (I remember the first jury-rigged units and the sales promo tape they sent me- it was made in a club basement with a home VCR recorder/camera that was very careful not to show a close-up of the product), but it still is the basic wet or dry leads, with a tens type unit..... for BIG bucks.
He's ready to cash in on anything he can.
I've never liked his marketing attitude or his claims.

Yes YOU DID!!!!

lol

I'll let you know what happens.

Thanks much

Melody

But wait, there's more! Call within the next 5 minutes, and we'll throw in one of these, absolutely FREE!

i heard last night about a biologic agent, ( sounds like something out of a spy movie) called tanezumab that is an monoclonal antibody against nerve growth factor which is being developed by Pfizer to treat pain. You would get one shot every 4 weeks. So 13 shots a year. By the way the shots cost $10,000 each. Im sure most of us could swing an extra $130,000 a year to treat our pain.

If you ask for this under the new health care plan im pretty sure this is where the death panels come in.

It's got a code name!!!!

codenamed RN624
And it's for Osteoarthritis, Interstitial Cystitis (god knows I know what THAT feels like), and lower back pain (right now I am having an attack of Sciatica but because I was at Dr. Fred's office for Alan's VNG test and my urine UTI test, I FORGET TO MENTION that I was in agony with my sciactica today.

Two days ago the weather was 85, today it's in the 40's and horrible.

My back knew it.

ugh.
But if they lower the price of this pain med to a reasonable $5000 a shot, I just might go for it.

lol