Thanks hon!!!

Not that I completely understood everything you said, but I'll get there.
Tomorrow we go and see Dr. Fred.

First we'll go to the lab and see if they faxed Dr. Fred the results.

Then we go see Dr. Fred. I can't wait to see what the results of all the tests he took turn out to be.

Guess what? He came home from Yoga class, got me on the bed and tried to make me lay down with my head facing the mattress and my butt up in the air and one leg held way up.!!!!

Don't ask what I did to him. He may never learn to walk again!!!

I mean really!!!!

Next he'll be asking me to stand on my head!!!

mel

Just Ordered this Book
 

I can hardly wait to read it and hope to learn even more about this condition that we all have in one form or another. I have the Numb Toes, etc., series, and refer back to them all the time. Thank you, Bob, for posting this information.

I think Glentaj explained it all very well like he always does, but surely this can't be Alan's first glucose tolerance test in 18 years of PN ?.
When he first got PN was he looking after himself, like he is now ? that MAY give a clue ?, but its going to be impossible to work it out without prior sugar tests to compare with these new findings, it MAY have been pre or frank diabetes that started it all off in the first place, its also very possible that it may have only stated only a couple years back.

All that loss of weight and exercise would have brought his glucose levels down a lot, so perhaps he might have had much higher sugar levels before i he started doing all the exercises and loosing all that weight.

When i was in my early 40's i still remember my doc saying to me that now your in your 40's, your over weight,[ i hardly done any exercise too ] he said your a good candidate for diabetes, well he wasn't far wrong, 6 to 8 years later i had prediabetes.
Seeing he gets relief from that Chiro/neuro then it may have just been his back that started it off first and the pre or diabetes added to it later on, its a hard one to work out :confused:
It sounds like his in good hands with Dr Goldfarb,

When Alan got the PN all those years ago, they gave him the 3 hour glucose tolerance test. I'll never forget that day because we had to spend the entire morning there, and the had to drink and come back etc.etc. His reading after that test was 155 and the paper that gave the reading said the range was in the normal factor because it was under 200.

No one told him he might be pre-diabetic, we never heard anything about this after that. They then said Alan had idiopathic PN. So we pursued other areas, all to no avail.

Now a month ago, Alan took a one hour glucose tolerance test and the reading was 137. The doctor said that's normal.

Dr. Goldfarb then said "why did they give you a one hour test, I ordered a three hour test, so back he went last week. We find the answers to that this afternoon.

Now because I'm a diabetic, I've always monitored his sugar, from time to time. Even after he eats dinner, it never goes over 100. His usual reading throughout the years is something in the 80 range.

Now I don't know what this means. But I'll tell you this. Alan used to be an overweight, stiff as a board person. Since going to Dr. Theirl, his whole body has changed and the PN has not progressed and has, to some degree, gotten better. He no longer needs pain pills. He just started cymbalta and that helps him.

So today shall tell the tale.

Will update later on what the latest results are.

Oh, I want to tell you what it says on the prescription form for the Lumbar Puncture. It says: Lumbar Puncture/Flurogudad-) Protein Glucose, Openly pressure - elly. Dx: CIDP (That's the best I can do with her handwriting).

What does this mean?

thanks,
Mel

a disappointment...
 

This book arrived yesterday, and today was the first time I had to look it
over.

While I have not read it yet...for a full impression, I did see on page 28 a
GLARING typo!

He suggests using 500mg of B12.
His vitamin supplement suggestion is infantile! :confused:

If he thinks 500mcg is the correct amount he is uniformed.
And certainly the mistake of 500mg went undetected.:thud:

The book is very small, thin. I hope to finish it this weekend.
And of course he has no clue about nutrient depletions by common drugs!

Oh, well.:Doh:

Don't buy the book yet, until I finish reading it. You might save some $$

so far....
 

Dr. Latov's book reads like a dictionary.

It is going down the list, of all the neuropathies, one sentence allowed for
each type. It is full of big medical words, and may be difficult for people who
do not have a working knowledge of the lingo.

Alan's spinal tap is in there. To diagnose CIDP...but then he states in the next
sentence the spinal tap may not show it reliably...hmmmm? It was a whopping two sentence paragraph on the usefulness of the spinal tap.

Anyone who has been here for a while, would already have read most of this.
I am hoping the "treatment" section is more helpful.
That will be later tonight.