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Old 05-16-2010, 01:47 PM #1
bnemecek bnemecek is offline
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bnemecek bnemecek is offline
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Default Similar story

I feel for you, Mike. I am in a similar situation as I have always been a pretty healthy, active male but I still developed these neuropathic sensations when I was 20 (I'm 23 now). My symptoms came on after I had a full body rash for 3 months, I just never returned to normal. All my blood work has been normal so far. The doctors haven't been able to find anything out of the ordinary.

I just had an emg/nc test with my neurologist which came back negative, so the next step is a skin biopsy to test for small fiber sensory neuropathy.

I have been on gabapentin for the past year or so, which helped at the beginning but doesn't really seem to do anything anymore. So I'm going back to my doctor in the next week to see if I can get on a painkiller because the pain can definitely be overwhelming at times.

I share the exact same characteristics as you (was a very hard worker and excited about the future until the symptoms hit) then I fell in to a pit of depression and started questioning everything. What's the point of anything if all you can think about is these stupid symptoms? But instead of continuing to think like that I really had to change my point of view on life. I used to be really into computers and wanted to work a desk job for the rest of my life, but sitting in one place for extended periods of time really makes my symptoms flare so I've decided to work outside where I can be in the sun and moving around.

And I don't know how close you are with your family but mine has been very supportive of me during these tough times, which has been a huge factor in me staying positive.

My best advice is to not give up and do what makes you feel good, be it lifting or whatever. I've found that being in the sun, exercise, constantly moving around really helps my condition. I'm really considering moving south to see if a climate change helps at all. Hope I could be of some help!

Oh, and the weed thing. I've found that I can't even do it anymore because it makes my symptoms go crazy. Last time I did it (sometime last week) I felt like I was on fire! I had to take a Vicodin to quell the pain. So I would suggest to stay away from it as much as you can.

Keep your head up. We all go through **** in life. We can't choose the cards we're dealt. What we can do is choose how to play them. And the longer you play, the more you learn. Keep at it and you'll perfect your game.

If you ever want or need anything I'll be here. It's always nice to talk to someone who is going through a similar experience. Later dude. Take care of yourself.
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Old 05-16-2010, 02:58 PM #2
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mrsD mrsD is offline
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mrsD mrsD is offline
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Its alarming how many young people are showing up on this board. Also at the myasthenia gravis (autoimmune) forum!
MG is not typically common in young males, yet 3 have joined here recently!

This has to be environmental... toxins, vaccines, or Vit D deficiencies, or diet.

Being outside in the sun and feeling better, is a big clue I think for getting Vit D tested!

Also I'd check your diet. Here is my diet thread:
http://neurotalk.psychcentral.com/thread121516.html

Gluten intolerance can really sneak up on you!
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Old 05-28-2010, 01:40 PM #3
mikerobinson41 mikerobinson41 is offline
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i saw my neurologist today and he is thinking that my tremors are not from my brian, but by my nerves. he also is starting to think that this is a 'spontanious genetic mutation' that would be autosomal recessive, because i have no one in my family with any type of genetic mutation/neuropathy.

he specualtes that because of my 'slightly high' arches in my feet, but my mom has very high arches in her feet and no problems. he says that they're not high enough for him to say for sure but he is 'speculating'.

i really at this point wouldn't mind if it was a gene mutation, obviously hoping for the 'best' lol, genetic mutation possible, but a diagnosis and a good idea of the future would do me well.

thanks for all your help
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Old 05-28-2010, 03:41 PM #4
Kitt Kitt is offline
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So what exactly does your neurologist think that you might have? Thank you.



Quote:
Originally Posted by mikerobinson41 View Post
i saw my neurologist today and he is thinking that my tremors are not from my brian, but by my nerves. he also is starting to think that this is a 'spontanious genetic mutation' that would be autosomal recessive, because i have no one in my family with any type of genetic mutation/neuropathy.

he specualtes that because of my 'slightly high' arches in my feet, but my mom has very high arches in her feet and no problems. he says that they're not high enough for him to say for sure but he is 'speculating'.

i really at this point wouldn't mind if it was a gene mutation, obviously hoping for the 'best' lol, genetic mutation possible, but a diagnosis and a good idea of the future would do me well.

thanks for all your help
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