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05-10-2010, 02:27 PM | #1 | ||
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New Member
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hi i have what my doctor has said is a type of peripheral neuropathy and really don't know much about the topic.
I have no one in my family's history with any form of neuropathy, tremor, or neurological problem. It started in March 2009 during a heavy weight lifting session, which I have not been able to get back to since. I felt a pull in my left elbow which with the research I've done was my ulnar nerve. For 3 months it was just annoying tendonitis(golfers elbow) in my left arm, then in july the tendonitis popped up in the other when I had been doing nothing but running at the time. In August 2009 I began having fasciculations in arms only. Then in October, frusturated with tendonitis and wanting to get back to lifting I asked my orthopedic if he thought it was my nerves, I got an emg which showed Ulnar entraptment in both arms. Then in November the fasciculations went all over my body. In december, trying to avoid surgery(still no lifting since march) I felt a tingling in both feet, 4 days later tremors in every muscle in my body. After that I saw one neuro in ann arbor, mi that said it was "nothing to worry about" and my tremors were a result of the adderall 20 mg I was taking twice a day, I went off meds and tremors stayed. Three weeks later I got a Brain and cervical MRI which showed nothing CNS. I am now at a new neuro but couldn't see one for a few months because of no rides(from feb-april) there. I got a new car and am seeing one in ypsilanti, mi now who said "it's a form of peripheral neuropathy, we just have to try and find out what it is." My tendonitis went away in October about 3 weeks after finding out about the nerves, tingling has little by little worsened, no pain but numness in the left pinky toe is completely numb. My nerves are still pinched in elbows and I have unexplainable tingling in my carpal digits. The feet tingle regardless and fall asleep sometimes now, but I still run about 3 miles a day and it doesn't effect them, my hands only tingle when I've been very active like they would with a pinched nerve, otherwise just pain in elbows. Sometimes when i crack my neck(I know bad, but addicting) I get shooting pains down my arms, which he can't explain either. Tremors are worse in hands and feet but are everywhere else, when i get nervous my face starts twitching all over, but tremors are constant and also feel like their slowly getting worse. Fasciculations are all over my body, sometimes not that often, other days 2 every five minutes. Tingling never hurts just feel "staticy" and annoying. My neuro is running all kinds of tests and have only seen him for the MRI and go back in tomorow to find out about all the blood tests run. This is really effecting my life at this point I'm very depressed to not lift, but more so scared to death of what could happen. any ideas? and can any of you with PN tremors tell me if they keep getting worse? I can't imagine my life 5 years from now if this is going to progress. ANY INSIGHT GREATLY APPRECIATED. ps i am in great shape was 6'6 198 in march 09 am now 6'6 185 with no lifting used to lift 5 times a week and run almost daily, eat well and very low body fat. thanks, mike |
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05-10-2010, 04:13 PM | #2 | ||
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Junior Member
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Sorry no one has been along yet to offer insight. I wish I could help - my journey in the neurological world started back in 1998 with cervical problems, but it sounds like they've screened your neck with an MRI - hopefully that's ruled out.
Someone should be along in a bit with more experience in PN than I - still in the learning process here. It's good that you are having blood work done; my neuro took 15 vials at one point to screen for a number of problems from Lyme to heavy metals to thyroid. Just know you are not alone. |
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05-10-2010, 04:19 PM | #3 | |||
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Wisest Elder Ever
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Have your Vit D measured. Also B12 at the same time.
At 19 you may be low in Vit D considering where you live. Fixing that and getting serum levels up to 50-60 ng/ml, might help. If you play video games, ? do musical instruments like guitars? or sit at lectures with your elbows on the tables? you could have stress or compression issues. Do you use MJ? it can be contaminated with pesticides which affect your nerves. Do you eat MSG foods, from dorms or restaurants? It can cause nerve symptoms. Do you play sports? stress the nerves in other ways? There are many many questions. Did you get vaccines this fall...both flu vaccines? These may induce autoimmune problems. You may be intolerant of gluten, which may cross the GI tract and get into the blood before digestion is complete, and cause neuropathies that way. Many many things! So tell us more... so we can help you be the detective you need to be to feel better!
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All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei ************************************ . Weezie looking at petunias 8.25.2017 **************************** These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
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05-11-2010, 08:26 AM | #4 | |||
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Senior Member
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As has been said- you gotta be the detective.
Step up to the plate and be constantly at-bat, finding out things and researching your particular problems. No one else is gonna do it. You will be more informed than your docs, if you keep at it.
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Bob B |
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05-11-2010, 12:57 PM | #5 | ||
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New Member
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ya i've played basketball all my life, football until i was 17, hockey, and soccer. At the time this occured, i was using creatine with argnine pre workout with about 2 marijuana joints and occassionally adderall at the same time then protein post workout everyday until that elbow "problem" in march. I also used marijuana before I ran everyday. Other than that I had no "drug" usage.
in late feb before this happened i had someone over to my house who i smoked marijuana with, and AFTER we smoked on the same paper he informed me he had "been throwing up all day and been sick, that day," the next day I woke up in vomit and was throwing up all day and that was the first time i had even thrown up since i was in the second grade. I don't know if that had anything to do with it but I often wonder. that was my senior year of high school tho where i smoked about a quarter to a half ounce of marijuana a week, once i went to college i cut way down, i rarely even touch it anymore. And since i've "cut down" my problems have seemed to only have gotten worse. |
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05-11-2010, 01:40 PM | #6 | |||
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Wisest Elder Ever
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There is a bacteria that causes food poisoning called Campylobacter and this can cause neuropathy. But you could have had a virus, like the Norwalk virus which is spread easily from person to person.
There have been other posters here who reported neuropathy symptoms following discontinuing MJ. MJ is used to control pain, and removing it would reveal the pain quickly. So you could have been in pain in the past and not known it. You could have an injury that is compressing or entrapping the nerve at the elbow. That should be looked at by the doctor. When you are working out and lifting, do you use a magnesium supplement? Fasics can occur when magnesium is low. I have a mag thread here: http://neurotalk.psychcentral.com/thread1138.html
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All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei ************************************ . Weezie looking at petunias 8.25.2017 **************************** These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
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